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  1. Vemurafenib: the adventure continues Digest - Sheepdawg on Aug 1, 8:42 AM
    1. Cheering for you - Pat on Aug 1, 10:31 AM
    2. Good to hear, hope the kidneys and liver issues settle down - Tim Clune on Aug 1, 10:46 AM
     
  2. Bad News - Wife update Digest - Pat on Jul 30, 12:42 PM
    1. Re: Bad News - Wife update - Todd on Jul 30, 1:24 PM
    2. bad ex-wife update - Mel on Jul 30, 2:22 PM
      1. bad news-wife update - Mel on Jul 30, 2:28 PM
        1. Thanks All - Pat on Jul 30, 5:28 PM
    3. Be Thinking of you Guys - Tim Clune on Jul 30, 2:28 PM
    4. Hopes, Prayers and Luck - Sheepdawg on Jul 30, 7:03 PM
    5. Sorry Pat and Debbie - Sue on Jul 30, 7:24 PM
    6. Pat - richard medhurst on Jul 31, 2:37 AM
    7. Seems like you and Mel.... - Rob on Jul 31, 5:52 AM
      1. More thanks - Pat on Jul 31, 11:46 AM
        1. And Sheep! - Pat on Jul 31, 11:49 AM
    8. Re: Bad News - Wife update - Waid on Jul 31, 4:02 PM
      1. Thanks WAID - Pat on Aug 1, 10:04 AM
     
  3. Any Thoughts? Digest - Todd on Jul 30, 11:01 AM
    1. Hi Todd! - Pat on Jul 30, 12:31 PM
      1. Re: Hi Todd! - Todd on Jul 30, 12:42 PM
    2. Re: Any Thoughts? - George on Jul 30, 2:52 PM
      1. George - great news - Pat on Jul 30, 5:31 PM
      2. Question for George - Todd on Jul 31, 3:27 PM
        1. Usually an IV line - Waid on Jul 31, 3:58 PM
          1. Thanks for the feedback - Todd on Aug 1, 6:26 AM
            1. Re: Thanks for the feedback - Waid on Aug 1, 2:58 PM
     
  4. 7th retuximab Digest - richard medhurst on Jul 30, 6:37 AM
    1. Good to Hear! - Tim Clune on Jul 30, 9:08 AM
    2. Way to go Rich - Pat on Jul 30, 12:34 PM
      1. way to go - richard medhurst on Jul 31, 2:40 AM
        1. Yes Very good kind of tired - Pat on Jul 31, 11:52 AM
          1. Pat - richard medhurst on Jul 31, 1:49 PM
     
  5. Light the Night Digest - Sue on Jul 30, 4:47 AM
    1. OH Canada! - Rob on Jul 30, 6:05 AM
      1. Re: OH Canada! - Sue on Jul 30, 8:53 AM
    2. I'm Hanging In There :-) - Tim Clune on Jul 30, 9:06 AM
     
  6. Patient Seminar Digest - Carolyn on Jul 24, 10:56 AM
    1. Re: Patient Seminar - Doug on Jul 25, 2:44 PM
      1. No... - Carolyn on Jul 26, 10:16 PM
        1. OSU doc - Sheepdawg on Jul 27, 8:44 AM
     
  7. 6th Retuximab Digest - richard medhurst on Jul 24, 1:12 AM
    1. 8 is Better - Tim Clune on Jul 24, 9:24 AM
    2. Keep it up Richard - Pat on Jul 24, 11:48 AM
    3. What does Rituximab do to your blood counts? - Todd on Jul 24, 2:11 PM
      1. blood counts - richard medhurst on Jul 25, 4:40 AM
      2. Anemia - Waid on Jul 25, 8:22 AM
      3. Different response - Sheepdawg on Jul 26, 7:15 PM
     
  8. Progress Report Digest - Tim Clune on Jul 23, 1:41 PM
    1. progress report - Mel on Jul 23, 3:34 PM
    2. I'm with Mel - Pat on Jul 23, 4:50 PM
    3. Re: Progress Report - George on Jul 23, 9:01 PM
    4. Wll Wishes - Thumper on Jul 24, 7:27 AM
    5. Better All Ready - NIH visit now 11 Aug - Tim Clune on Jul 24, 10:43 AM
      1. Hey, let's get things mov'n - Pat on Jul 24, 11:45 AM
      2. Tim here's to Aug 11 !! - Rob on Jul 24, 5:09 PM
      3. Tim - richard medhurst on Jul 31, 10:48 AM
    6. Hang in there - Sheepdawg on Jul 26, 7:19 PM
     
  9. Looking for info about vemurafenib terapy Digest - Marino on Jul 18, 2:04 AM
    1. While you wait for a response try the search function... - Rob on Jul 21, 5:42 AM
      1. Re: While you wait for a response try the search function... - Marino on Jul 21, 7:58 AM
    2. Hi Marino - Welcome! - Pat on Jul 21, 9:58 AM
      1. Re: Hi Marino - Welcome! - Marino on Jul 22, 12:42 AM
        1. Less invasive? - Waid on Jul 25, 8:19 AM
          1. RE: Less invasive? I hope so... - Marino on Jul 27, 10:17 AM
    3. Vermurafenib - David Belfield on Jul 21, 1:51 PM
    4. Information on Vemurafenib - Todd on Jul 28, 8:48 AM
     
  10. 5th retuximab Digest - richard medhurst on Jul 16, 9:25 AM
    1. Good Report - Thumper on Jul 16, 10:18 AM
    2. Way to go, Rich! - Pat on Jul 21, 9:59 AM
     
  11. Long term fx of those anti drugs... Digest - BB on Jul 15, 7:53 PM
    1. Valtrex is probably okay - Waid on Jul 16, 9:37 AM
     
  12. Vermurafenib Update Digest - David Belfield on Jul 10, 1:31 PM
    1. Dave! - Pat on Jul 10, 5:25 PM
      1. Tim - David Belfield on Jul 12, 12:08 PM
    2. Congrats, David - Waid on Jul 11, 3:43 PM
      1. Thanks Waid - David Belfield on Jul 12, 12:31 PM
        1. Good news on the HCL front Dave... - Rob on Jul 12, 5:54 PM
          1. Biking - David Belfield on Jul 13, 12:20 AM
            1. Re: Biking - Mel on Jul 13, 6:24 AM
              1. Solbar? - Rob on Jul 15, 10:23 AM
                1. solbar - Mel on Jul 18, 7:55 AM
            2. A Triumph ST ... - Rob on Jul 15, 10:16 AM
              1. Forget - David Belfield on Jul 21, 2:08 PM
     
  13. Work and Chemo Digest - Jennifer on Jul 9, 10:21 AM
    1. Re: Work and Chemo - Anonymous on Jul 9, 11:22 AM
    2. All Depends - Tim Clune on Jul 9, 11:57 AM
    3. I mostly worked - Waid on Jul 9, 12:18 PM
    4. re Work and Chemo - Pat on Jul 9, 3:38 PM
    5. Work and Chemo - IslandGrl on Jul 9, 8:27 PM
      1. IslandGrl! - Pat on Jul 10, 10:16 AM
        1. RE Pat - IslandGrl on Jul 10, 3:44 PM
    6. 10 weeks - Vincent James on Jul 9, 9:19 PM
      1. Vince re Panic attacks - Pat on Jul 10, 10:22 AM
        1. THANKS!!! - Vincent James on Jul 16, 7:34 PM
    7. Re: Work and Chemo - Will on Jul 10, 1:29 PM
      1. Hi Will! - Pat on Jul 10, 5:14 PM
      2. Will! - Waid on Jul 11, 3:37 PM
     
  14. 4th Retuximab Digest - richard medhurst on Jul 9, 8:05 AM
    1. Good Deal! - Tim Clune on Jul 9, 8:42 AM
      1. good deal - richard medhurst on Jul 9, 9:49 AM
        1. Been There :-) - Tim Clune on Jul 9, 11:54 AM
          1. Sweet dreams! - Pat on Jul 9, 3:26 PM
     
  15. how Yahoo doing Digest - Mel on Jul 8, 11:49 AM
    1. Thank you Mel - Pat on Jul 8, 2:55 PM
      1. Wanda was a real sweetheart and I miss her. - Rob on Jul 8, 7:57 PM
    2. Good Thing You Did Mel, Pat & Rob - Thumper on Jul 10, 7:41 AM
      1. Thumper! - Pat on Jul 10, 10:04 AM
        1. SO TRUE - Thumper on Jul 10, 1:40 PM
     
  16. KC? Digest - Pat on Jul 8, 9:55 AM
    1. Re: KC? - Anonymous on Jul 9, 11:18 AM
      1. Congratulations KC - Pat on Jul 9, 3:24 PM
     
  17. Hairy cell/Rituximab/July.2014 Digest - Deb M on Jul 7, 3:06 PM
    1. Welcome, Deb - Waid on Jul 7, 3:33 PM
    2. Rituxan(Rituxumab) - Tim Clune on Jul 7, 3:35 PM
    3. Hi Deb M - Pat on Jul 7, 4:42 PM
      1. Re: Hi Deb M - Debra Morris on Jul 8, 2:00 PM
        1. Welcome Deb - Sue on Jul 8, 7:40 PM
        2. Being the top - Waid on Jul 9, 12:07 PM
        3. Cheering you on Deb - Pat on Jul 9, 3:45 PM
     
  18. Linda? Digest - Pat on Jul 7, 12:57 PM
  19.  
  20. Brother diagnosed with HCL! Digest - Jennifer on Jul 6, 5:29 PM
    1. Likely HCL-C, HCL-V - Tim Clune on Jul 6, 7:24 PM
      1. Biopsy - Jennifer on Jul 6, 8:45 PM
        1. BRAF V600E = HCL-C or HVL-V - Tim Clune on Jul 6, 9:22 PM
          1. E-Mail - Jennifer on Jul 6, 9:52 PM
            1. RE: Email - Tim Clune on Jul 6, 10:11 PM
    2. HCL-v - Thumper on Jul 7, 8:35 AM
      1. Re: HCL-v - Jennifer on Jul 7, 9:29 AM
        1. Depends - Tim Clune on Jul 7, 11:33 AM
    3. Hi Jennifer - Pat on Jul 7, 12:38 PM
      1. Update on brother! - Jennifer on Jul 7, 3:39 PM
        1. Hurrah! - Waid on Jul 7, 3:53 PM
          1. Cheering you and your brother - Pat on Jul 7, 4:31 PM
        2. Great News - Tim Clune on Jul 7, 6:16 PM
          1. Insurance - Jennifer on Jul 8, 8:25 PM
            1. A hiccup in insurance... - Jennifer on Jul 22, 9:38 AM
              1. Link - Waid on Jul 25, 8:09 AM
     
  21. Happy 4th to All and Thanks to All Servicemen and Servicewomen Digest - Pat on Jul 3, 10:58 AM
  22.  
  23. 3rd retuximab Digest - richard medhurst on Jul 2, 9:41 AM
    1. Richard! - Pat on Jul 3, 10:46 AM
      1. Pat - richard medhurst on Jul 3, 11:53 AM
        1. Ohhhh Kayyyy - Pat on Jul 3, 1:12 PM
          1. Another - Waid on Jul 4, 1:14 PM
            1. ha ha - richard medhurst on Jul 4, 1:32 PM
     
  24. Audio and Presentation Slides from 2014 Symposium Digest - Todd on Jul 2, 7:36 AM
    1. Thanks - Tim Clune on Jul 2, 8:37 AM
    2. Thank you Todd - Pat on Jul 2, 9:30 AM
    3. CR v PR v MRD question - BB on Jul 7, 1:31 PM
      1. MRD - Todd on Jul 8, 11:41 AM
        1. ha! - BB on Jul 8, 12:13 PM
     
  25. Fun with Vemurafenib Digest - Sheepdawg on Jul 1, 6:26 AM
    1. Keep It Up! - Tim Clune on Jul 1, 8:15 AM
      1. Yes - cheering for you Sheep! - Pat on Jul 1, 10:26 AM
    2. re: side effects - Vincent James on Jul 1, 7:50 PM
      1. Vincent! - Pat on Jul 2, 9:23 AM
        1. Yes - VincentJames on Jul 2, 7:35 PM
    3. Dose - David Belfield on Jul 10, 1:50 PM
      1. Dosing - Sheepdawg on Jul 14, 6:44 AM
     
  26. 5 days in hospital Digest - richard medhurst on Jun 30, 12:31 PM
    1. The opposite - Sheepdawg on Jul 1, 6:03 AM
      1. Richard and Sheep - Pat on Jul 1, 10:21 AM
    2. re 5 days in hospital - Vincent James on Jul 1, 7:57 PM
     
  27. Misha? Digest - Pat on Jun 30, 12:04 PM
    1. Re: Misha? - Misha on Jul 5, 6:18 AM
      1. WooHoo! Awesome Misha - Pat on Jul 7, 12:46 PM
     
  28. What is your take on this article? Digest - Pat on Jun 26, 12:56 PM
    1. Disagree with the larger message in the article - Jeff on Jun 27, 4:35 AM
    2. Studies and articles - Rob on Jun 27, 5:15 AM
      1. Well Said Rob - Thumper on Jun 28, 9:52 AM
        1. Thump? - Rob on Jun 29, 2:38 PM
          1. U 2 - Thumper on Jul 1, 9:15 AM
            1. Speaking of 50 years ago--this pic would be 47 years... - Rob on Jul 1, 10:03 PM
              1. When we were YOUNG - Thumper on Jul 2, 8:01 AM
              2. Wow - Pat on Jul 2, 9:19 AM
                1. Thump Pat - Rob on Jul 2, 2:43 PM
                  1. Question Rob - Thumper on Jul 2, 5:34 PM
                    1. You're thinking of Khe San. - Rob on Jul 2, 8:29 PM
                      1. Chemicals and Military Service - Thumper on Jul 3, 10:14 AM
                        1. One of the biggest effects on AO folks was .... - Rob on Jul 3, 5:29 PM
                      2. No evidence - Waid on Jul 7, 3:14 PM
                        1. Yes that was my understanding... - Rob on Jul 9, 6:09 PM
                    2. BTW Thump, Pat and Tim - Rob on Jul 2, 8:47 PM
              3. Amazing How a Photo can stir up so many feelings... - Tim Clune on Jul 2, 5:59 PM
                1. No problem. - Rob on Jul 2, 8:38 PM
                  1. Good Idea Rob ! - Thumper on Jul 3, 10:01 AM
                    1. The policy was about... - Rob on Jul 3, 6:04 PM
                      1. Worth a Shot - Thumper on Jul 4, 9:37 AM
    3. Thanks! Much appreciated - Pat on Jun 27, 9:09 AM
    4. It's right, except for where it's wrong - Waid on Jun 28, 5:36 PM
      1. WAID? - Rob on Jun 29, 2:42 PM
     
  29. Treatment plan Digest - KC on Jun 24, 5:26 AM
    1. Hi KC - Pat on Jun 24, 8:26 AM
      1. Thanks - KC on Jun 24, 8:57 AM
        1. Hi KC - Sue on Jun 24, 6:00 PM
          1. re Shingles - Pat on Jun 25, 10:31 AM
    2. Welcome, KC - Waid on Jun 24, 2:43 PM
      1. Sulpha drugs - Sue on Jun 24, 6:10 PM
        1. sulpha drugs - Mel on Jun 24, 9:09 PM
          1. Re: sulpha drugs - Waid on Jun 25, 12:17 PM
      2. Re: Welcome, KC - KC on Jun 25, 4:35 AM
        1. re PICC line - my experience - Pat on Jun 25, 10:29 AM
          1. Re: re PICC line - my experience - KC on Jun 25, 10:48 AM
          2. Re: re PICC line - my experience - KC on Jun 25, 10:52 AM
        2. Not really* - Waid on Jun 25, 12:22 PM
      3. Ah, to be young and HCL.... - BB on Jul 7, 1:39 PM
        1. Nobody knows - Waid on Jul 7, 3:41 PM
     
  30. blood test Digest - richard medhurst on Jun 23, 9:05 AM
    1. You are a trooper - Pat on Jun 23, 11:16 AM
     
  31. To Pat Digest - Sue on Jun 21, 7:39 PM
    1. re Wife - Pat on Jun 23, 11:09 AM
     
  32. update Digest - richard medhurst on Jun 21, 7:28 AM
    1. Re: update - Pat on Jun 23, 11:05 AM
     
  33. LMB 2 Digest - Linda on Jun 20, 11:50 AM
    1. Hi Linda! - Pat on Jun 20, 12:16 PM
    2. I don't think so - Waid on Jun 21, 1:20 PM
      1. Re: I don't think so - Linda on Jun 22, 4:59 PM
     
  34. Results For 28 HCL Patients Treated With BRAF Inhibitor Vemurafenib Digest - Jeff on Jun 20, 6:07 AM
    1. Thanks Jeff - Pat on Jun 20, 9:48 AM
      1. Thanks - Jeff on Jun 21, 1:10 AM
    2. RE: MEK/BRAF - Tim Clune on Jun 20, 11:08 AM
     
  35. hi all Digest - richard medhurst on Jun 19, 5:06 AM
    1. YEA !!! - Thumper on Jun 19, 8:57 AM
    2. Awesome! - Pat on Jun 19, 12:52 PM
      1. awesome - richard medhurst on Jun 20, 2:11 PM
        1. I took time off too - Pat on Jun 20, 5:44 PM
    3. Congrats - Waid on Jun 21, 1:18 PM
     
  36. DITTO Digest - Tim Clune on Jun 16, 10:51 AM
    1. Re: DITTO - Ken Beck on Jun 17, 11:53 AM
     
  37. Cladribine-Rituximab vs ? Digest - Ken Beck on Jun 16, 7:32 AM
    1. Clad/Ritux - Sheepdawg on Jun 16, 10:32 AM
    2. Cladribine with Rituximab - Stephen Spence on Jun 16, 3:34 PM
    3. Re: Cladribine-Rituximab vs ? - Ken on Jun 17, 11:49 AM
      1. Hi Ken - Pat on Jun 18, 3:22 PM
     
  38. Day 5 Digest - richard medhurst on Jun 13, 2:37 AM
    1. Good Luck - Anonymous on Jun 15, 7:07 AM
    2. Way to go Richard! - Pat on Jun 18, 3:16 PM
     
  39. Vemurafenib Wk 3+ Digest - Sheepdawg on Jun 12, 10:32 AM
    1. RE: I start MEK/BRAF in 3-4 weeks - Tim Clune on Jun 12, 11:03 AM
      1. Mek/braf in 3-4 weeks - mel on Jun 12, 2:51 PM
        1. Thanks - Tim Clune on Jun 13, 12:51 PM
      2. Hey Tim - Pat on Jun 12, 5:30 PM
        1. RE: Bowe Bergdahl - Tim Clune on Jun 13, 8:58 AM
          1. My 2 Cents - Thumper on Jun 13, 2:13 PM
            1. Thanks Thumper - Pat on Jun 13, 2:59 PM
              1. Re: Thanks Thumper - Will on Jun 13, 5:59 PM
      3. Good luck with the new trial! - Sheepdawg on Jun 13, 6:05 AM
        1. Thanks - Tim Clune on Jun 13, 12:53 PM
    2. Keep it up Sheep - Pat on Jun 12, 5:23 PM
    3. Good News - David Belfield on Jun 24, 11:10 AM
     
  40. day 3 and 4 Digest - richard medhurst on Jun 12, 2:16 AM
    1. Richard and Pat - Sue on Jun 12, 8:10 AM
      1. Thanks Sue - Pat on Jun 12, 5:10 PM
     
  41. DAY 1 AND 2 Digest - richard medhurst on Jun 10, 1:53 PM
    1. Good For You - Thumper on Jun 11, 9:27 AM
    2. Keep it up Richard! - Pat on Jun 11, 10:54 AM
     
  42. Update Digest - David Belfield on Jun 6, 12:59 PM
    1. Keep up the good work and updates - Pat on Jun 6, 3:44 PM
    2. Great News! - Tim Clune on Jun 6, 7:10 PM
     
  43. its that time again Digest - richard medhurst on Jun 4, 6:32 AM
    1. Good Luck - Tim Clune on Jun 4, 7:19 AM
      1. THANKS TIM - richard medhurst on Jun 4, 8:08 AM
    2. re its that time again - Pat on Jun 4, 10:39 AM
    3. Hi Richard - Anonymous on Jun 4, 2:05 PM
      1. Thanks Nicky - richard medhurst on Jun 5, 10:07 AM
        1. Re: Thanks Nicky - Anonymous on Jun 5, 2:11 PM
          1. thats great - richard medhurst on Jun 6, 1:16 AM
            1. Re: thats great - Anonymous on Jun 11, 2:11 PM
            2. facebook - Anonymous on Jun 11, 2:12 PM
          2. North Wales - David Belfield on Jun 6, 12:40 PM
            1. local! - Anonymous on Jun 11, 2:18 PM
    4. Thinking of you - Sue on Jun 5, 2:11 PM
      1. hi sue - richard medhurst on Jun 6, 1:22 AM
     
  44. Interesting! Digest - Anonymous on May 30, 3:01 PM
  45.  
  46. 8 Weeks Post 2cda Digest - Kyle G on May 30, 2:20 PM
    1. My experience - Anonymous on Jun 1, 9:01 AM
     
  47. @ 5 weeks Post Tx Digest - Anonymous on May 30, 9:16 AM
    1. Glad to hear - Pat on May 30, 11:33 AM
      1. Re: Glad to hear - Misha on Jun 8, 6:16 PM
    2. Racing heart - Waid on May 30, 1:15 PM
      1. Re: Racing heart - Misha on Jun 8, 7:08 PM
     
  48. Vemurafenib, Cycle1Wk2 and some thoughts Digest - Sheepdawg on May 28, 6:57 AM
    1. RE: Good to Hear! - Tim Clune on May 28, 8:25 AM
    2. Good news and future positive - Pat on May 28, 5:10 PM
      1. Pronunciation - Pat on May 28, 5:18 PM
        1. Meaning of Vemurafenib - Sheepdawg on Jun 3, 9:20 AM
      2. Hands full - Sheepdawg on Jun 3, 9:16 AM
        1. re hands full - Pat on Jun 4, 10:43 AM
     
  49. Methionine Is The Cure To HCL Digest - BradZar53 on May 24, 12:37 AM
    1. Vegan - Waid on May 24, 9:43 AM
    2. 22 years in Remission and a meat eater - Lou DiFinizio on May 24, 3:20 PM
      1. So That is WHY ?? - Thumper on May 25, 9:01 AM
        1. When my number came up - Lou DiFinizio on May 26, 4:58 AM
    3. Methionine - Sheepdawg on May 28, 7:03 AM
     
  50. its time Digest - richard medhurst on May 20, 5:56 AM
    1. May Your Hairies Die Quickly! - Tim Clune on May 20, 8:20 AM
    2. OUCH - Thumper on May 20, 9:46 AM
    3. re: its time - Pat on May 20, 11:40 AM
    4. Re: its time - Anonymous on May 20, 6:09 PM
    5. its time - Mel on May 20, 6:11 PM
    6. Yay! - SueL on May 20, 7:31 PM
      1. thanks - richard medhurst on May 21, 4:39 AM
    7. Hi Richard - Vincent James on May 21, 8:28 PM
      1. thanks - richard medhurst on May 22, 9:23 AM
    8. Good luck - Waid on May 24, 9:43 AM
    9. Keep us posted - Ken Beck on May 27, 10:39 AM
      1. ken - richard medhurst on May 27, 1:49 PM
     
  51. Consortium Digest - Susie on May 19, 5:44 PM
    1. Anyone we know? - Pat on May 20, 11:35 AM
     
  52. I am a new member on the blog Digest - Susie on May 19, 5:43 PM
    1. Hi Susie, Welcome - Pat on May 20, 11:31 AM
    2. To Susie from Sue. - SueL on May 20, 7:36 PM
    3. welcome - Vincent James on May 21, 8:03 PM
    4. Welcome, Susie - Waid on May 24, 9:45 AM
     
  53. low wbc Digest - Ali on May 19, 4:20 PM
    1. Hi Ali - Pat on May 19, 4:55 PM
      1. The Rule of Thumb for HCL - Pat on May 19, 4:59 PM
     
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