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We are a group of friends who have come together because we share the common bond of caring for someone who has Trisomy 21. We are here to share therapy tips, medical issues, laughs, accomplishments and yes, even frustrations. We embrace what Trisomy 21 has brought into our lives. We feel that it has taught us to appreciate the true meaning of life. We count our children as blessings! We will fiercely protect them and fight for their lives to be valued just as all other peoples' are. We share our pictures, our stories and our hearts here not only to provide friendship and support for each other, but also in the hopes that others will open their minds and their hearts to our unique children and, in turn, make a better world for everyone.
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What is Laney up to for summer and her senior year?

May 19 2008 at 1:31 PM
CherylV  (Login CherylV)

Hi Lisa,

I am just wondering how things are going for Laney and your family out there in Iowa as her senior year approaches? This board is so very quiet most of the time. I just found a wonderful college nursing student who will dothings with E twice a week in the summer and then one afternoon a week during the academic year. We will be going to Alaska in late July and will see the college student who did things with her two years ago who has been volunteering in Juneau while on our cruise. All in all, this is shaping up to be a good summer - but it did start on May 9th as the dining halls closed.

CR

 
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(Login Laneysmama)

Sounds like a good upcoming summer for you!

May 30 2008, 5:36 PM 

Sorry, I have been away from here. It is so quiet I have forgotten to check.

Laney just had her last day of her Junior year yesterday. She will really miss going to school each day and she just told me she doesn't want to grow up. Her favorite cousin graduated and she will miss her terribly. She does SCL with Laney though so they will have fun together this summer. Today they made cookies and had hair appointments together. Laney went to prom with Indy and her boyfriend last month and had a ball.

Laney will do a 9 day/ 3 hr per day at Larrabee Center. It is an adult job experience center to see where she is at for future job training. The school will provide transportation to this as it is a half hour from here.

I got a new job for next year and will be working longer hours as the high school media specialist and I'm hoping this works out for Laney.

I'm not sure I told you about her newest challenge- contacts. She was diagnosed with karataconus. An eye disorder where the cornea is forming cones and glasses no longer help her vision so she is where RGP or rigid gas permeable lenses. It has certainly been interesting, not easy, just interesting. Her vision is much better but the comfort level is not great. This will be another life long challenge. Laney has not yet been able to insert the lenses but does take them out on her own now. Karataconus is more common in people with Ds.

Senior year will be a lot like this year. She loves the cafeteria so I think we will continue that as job experience and she is still cleaning the public library and does a fine job with that. We are just ready for break now.
Thanks for asking.
Lisa

 
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(Login KathrynSoper)

Story for Gifts II?

June 1 2008, 3:23 PM 

Lisa, I'm poking around the forum here, looking for potential stories for Gifts II. Would you be interested in writing about Laney? The guidelines are here: http://giftsds.segullah.org/gifts-volume-ii/.

My email is kathrynsoper@gmail.com



Kathryn Lynard Soper
Editor of GIFTS
Mother of Thomas (DS) 10/2005
Sam - 2003
Matt - 2001
Christine - 1999
Andrew - 1997
Ben - 1994
Elizabeth - 1993

 
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