Trisomy 21 Online Community
   
     

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We are a group of friends who have come together because we share the common bond of caring for someone who has Trisomy 21. We are here to share therapy tips, medical issues, laughs, accomplishments and yes, even frustrations. We embrace what Trisomy 21 has brought into our lives. We feel that it has taught us to appreciate the true meaning of life. We count our children as blessings! We will fiercely protect them and fight for their lives to be valued just as all other peoples' are. We share our pictures, our stories and our hearts here not only to provide friendship and support for each other, but also in the hopes that others will open their minds and their hearts to our unique children and, in turn, make a better world for everyone.
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re:first post

October 7 2006 at 12:20 AM
  (Login BECKY061502)


Response to first post....im new :)

I am new to this site as well. I am 27 and I have a 7 month old. She did not have to have surgery, but there have been many people that I met in my local suport group that have had children have the surgery and they did very well. One little boy started coming back to the breakfasts that they had only 2 weeks after he had it done. So I am sure that everything will be fine.
Jocelynn has had problems eatting as well. Her theapists say it is because of the downs and low muscle tone in her mouth muscles. She is seeing a speach and feeding therapist and is doing much better. She is now eating baby food off of a spoon and is no longer having problems with choking on her formula.

 
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