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We are a group of friends who have come together because we share the common bond of caring for someone who has Trisomy 21. We are here to share therapy tips, medical issues, laughs, accomplishments and yes, even frustrations. We embrace what Trisomy 21 has brought into our lives. We feel that it has taught us to appreciate the true meaning of life. We count our children as blessings! We will fiercely protect them and fight for their lives to be valued just as all other peoples' are. We share our pictures, our stories and our hearts here not only to provide friendship and support for each other, but also in the hopes that others will open their minds and their hearts to our unique children and, in turn, make a better world for everyone.
 

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any thoughts?

December 11 2006 at 4:41 PM
  (Login heathernic28)

 

HI! This is my first time writing in though I've been reading and viewing this site frequently since March-I am 26 and my husband 28: we have a 4 year old and in March delivered a healthy baby girl-she just happens to have an extra 21st chrosome. We had no idea until she was born-and then even after she was born the Dr's couldn't decide wether to test her for trisomy 21 since the only sign she had was a slight look in her eyes (she was delivered face up, so the flattened facial profile wasn't a flag to them). Finally the tests came back and here we are today. Anyway, my question is regarding development-we are involved in PT/OT and early intervention, so far she is meeting all the "typical child" guidelines for development (she's 9 months old) she is also VERY vocal babbling all day "baba" "dada" we have also been blessed with a clean bill of health (everything has checked out so far). Has anyone else experienced this? We received her diagnosis but since then it's been very positive (of course we've had our ups and downs and tons of Dr appts to various specialists and we've had our dark days) Again, we are very thankful for all of the 'positives' that we're experiencing but am I wrong to keep my guard up (I am just afraid that our luck will end)????
I would love any input....
Camille's mom-Heatherhttp://www.network54.com/Realm/tmp/1165873190.JPG

 
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  • Heather - sheena on Jan 30, 2007, 11:53 AM
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  • i'm new - Janice on Feb 2, 2007, 10:13 PM
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