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We are a group of friends who have come together because we share the common bond of caring for someone who has Trisomy 21. We are here to share therapy tips, medical issues, laughs, accomplishments and yes, even frustrations. We embrace what Trisomy 21 has brought into our lives. We feel that it has taught us to appreciate the true meaning of life. We count our children as blessings! We will fiercely protect them and fight for their lives to be valued just as all other peoples' are. We share our pictures, our stories and our hearts here not only to provide friendship and support for each other, but also in the hopes that others will open their minds and their hearts to our unique children and, in turn, make a better world for everyone.
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i'm new

February 2 2007 at 10:13 PM
  (Login burch11906)


Response to any thoughts?

 

hi your story sounds alot like mine we had no idea until after the birth and the doc's said she had almond shaped eyes so they were going to test her for DS we were surprised to find out she did but loved her no less we have also been very lucky she has been tested for alot of things but only has had a underactive thyroid which everyone in my family has. i feel like theres still things that need to be checked and things that need to be done but they say right now theres not and shes fine but it hard to accept when you hear about all that can go wrong its very scary and i often lose sleep at night wondering if everything is really ok but i have to keep reminding myself that we have been very lucky to have such a healthy little girl who has just turned 1 she is awesome and she amazes me everyday as i'am sure yours does too.

 
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