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hi i just went to a support group last night for the first time that i found by myself over the internet it was a hour drive but worth it it was so nice to talk to other parents and see that were not alone my daughter's name is Mallory i'd like to put a pic up but i have yet to figure out how to she is so amazing and i love her more than anything she makes a new face or does something silly everyday i'm so lucky to have her