Trisomy 21 Advocacy

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We are a group of friends who have come together because we share the common bond of caring for someone who has Trisomy 21. We are here to share therapy tips, medical issues, laughs, accomplishments and yes, even frustrations. We embrace what Trisomy 21 has brought into our lives. We feel that it has taught us to appreciate the true meaning of life. We count our children as blessings! We will fiercely protect them and fight for their lives to be valued just as all other peoples' are. We share our pictures, our stories and our hearts here not only to provide friendship and support for each other, but also in the hopes that others will open their minds and their hearts to our unique children and, in turn, make a better world for everyone.

Trisomy 21 Online Community Advocacy Discussion Forum

This board is meant to be a place for our community members to discuss advocacy issues. Hopefully we can get some conversations going about these issues that are so important to our children. Be sure to check out the rest of our site by using the links at the side of this page.

Note that we also have a "Helpful Hints" page to help you navigate the discussion forums.

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Two pending Federal bills need your help now! - Jan (Nash's Mom) on Apr 29, 2008, 8:23 PM

Parents who feel railroaded at IEP meetings... - Anonymous on May 4, 2007, 5:55 PM

FINAL IDEA REGULATIONS ANNOUNCED - Jan on Aug 8, 2006, 4:34 PM

A Leap of Faith..... - Tara Marie on Jul 25, 2006, 11:04 PM

Indy's Child Parenting Magazine Issue........ - Jan on Jul 6, 2006, 1:39 PM

More thoughts... - Betsy on Jul 6, 2006, 1:54 PM

Jeff just got a call..... - Jan on Jul 6, 2006, 2:12 PM

I knew they would call.... - Tara Marie on Jul 6, 2006, 2:18 PM

Washington Parent does a SN issue... - Beth on Jul 6, 2006, 9:29 PM

Jan I am so sorry this has happened to your family - Dani on Jul 6, 2006, 2:45 PM

Jan, I'm glad they are finally getting back to you! (m) - Julie on Jul 6, 2006, 6:20 PM

Question/Advice about response to cover picture.... - Jan on Jul 7, 2006, 8:45 AM

That's a tough one, I think it would..... - LauraQ on Jul 7, 2006, 2:25 PM

My thoughts on this - Susan on Jul 7, 2006, 3:33 PM

I see your point - Jan on Jul 7, 2006, 10:34 PM

I think the truth is.... - Nicole on Jul 7, 2006, 3:39 PM

totally agree - Jan on Jul 7, 2006, 10:27 PM

O.k. I'm going to weigh in with a different opinion - Betsy on Jul 7, 2006, 11:39 PM

I guess what bothers me the most is the editorial.....and the blantant discrimination - Tara Marie on Jul 8, 2006, 4:39 PM

I completely agree TM - Dani on Jul 8, 2006, 9:18 PM

Someone else that just doesn't "get it"...... - Jan on Jul 7, 2006, 1:48 PM

Good for you Jan! I liked your response! - LauraQ on Jul 7, 2006, 2:19 PM

LOL - Jan on Jul 7, 2006, 11:23 PM

I think it's a great example of people not walking in our shoes... - Nicole on Jul 7, 2006, 3:43 PM

I know Nic - Jan on Jul 7, 2006, 11:20 PM

My favorite "non sequitur" smalltalk strategy might work (m) - Penny on Jul 8, 2006, 8:02 PM

oooooh I like! - Jan on Jul 11, 2006, 2:33 PM

Update... - Jan on Jul 11, 2006, 2:34 PM

Jan, just wondering how your meeting went ? n/t - Dani on Jul 14, 2006, 2:09 PM

The meeting went as well as can be expected.... - Jan on Jul 17, 2006, 1:20 PM

Jan - Any idea - Betsy on Jul 20, 2006, 10:33 PM

New York Times article, "A Wrongful Birth?" and letter to editor - Qadoshyah on Mar 21, 2006, 6:15 PM

Down Syndrome Awareness Week? - Daniel Jackson on Nov 5, 2005, 7:45 PM

There is a National Down Syndrome Month - Michelle on Apr 6, 2006, 8:50 PM

Endorsement of NDSS Comments on IDEA 2004 - Jan on Sep 2, 2005, 4:42 PM

Need input on Documentary on Down syndrome.. - Girard Sagmiller on Jul 29, 2005, 3:45 PM

Hello... - Monica on Jul 30, 2005, 12:55 PM

NDSC and NDSS Prenatal Testing Bill Joint Statement - Jan on Mar 8, 2005, 6:59 PM

Update - Jan and Nash on Mar 16, 2005, 3:25 PM

~*~*~ ROLL CALL - WHO IS CHECKING IN HERE? ~*~*~ - Monica on Jan 15, 2005, 5:09 PM

Kay, E.J., Ryan 5, Drake4(T21), Katelyn 3 in Streator Illinois nt - Kay Drakesmom on Feb 16, 2005, 11:39 PM

I check in here too! - LisaLily'smommy on Mar 19, 2005, 9:48 PM

Advocacy Alert regarding Chatelaine Magazine (Canada) - Katrina on Aug 27, 2004, 5:53 PM

ACTION ALERT from the NDSS on the IDEA.....We need all of you to advocate!! (M) - Christine on Jun 3, 2004, 9:34 AM

Word is that they have NOT gotten many phone calls from parents/advocates - Christine on Jun 4, 2004, 3:32 PM

IMPORTANT! Need everyone's help & support for the Senate IDEA vote TODAY! (M) - Christine on May 12, 2004, 12:59 PM

What can I do to help? - Beth on May 6, 2004, 7:56 AM

Hi Beth - Banah on May 6, 2004, 12:38 PM

Thanks, Banah - Beth on May 10, 2004, 6:23 PM

IDEA /Senate call in day is Monday - Jeff - BigDaddy to Nash on Apr 29, 2004, 10:22 PM

Here is the sample letter - Jan and Nash on Apr 30, 2004, 9:09 AM

Letter writing Addresses Listed Here (m) - Banah on Apr 28, 2004, 10:23 AM

Morning News Shows (ABC, NBC, CBS) - Banah on Apr 28, 2004, 10:30 AM

Banah, I will take these - becky on May 12, 2004, 10:47 PM

Thanks Becky! - Banah on May 17, 2004, 11:15 AM

The View, Regis & Kelly, Sharon Osbourne - Banah on Apr 28, 2004, 10:33 AM

I've been writing to these shows weekly as well... - Banah on Jun 14, 2004, 12:40 PM

Oprah, Dr. Phil Show - Banah on Apr 28, 2004, 10:35 AM

I will do these ones :) - Monica on May 27, 2004, 10:38 PM

Thanks Monica!! - Banah on Jun 2, 2004, 12:38 PM

several months later but will write to these ones (nt) - Kari and Tristan on Aug 20, 2004, 12:43 PM

Dateline, ABC News (20/20) - Banah on Apr 28, 2004, 10:42 AM

I've been writing to these shows weekly as well... - Banah on Jun 14, 2004, 12:37 PM

Ellen, Montel, Ali & Jack - Banah on Apr 28, 2004, 10:51 AM

I've been writing to these shows weekly as well... - Banah on Jun 14, 2004, 12:39 PM

Parents, Parenting Magazines - Banah on Apr 28, 2004, 2:31 PM

I've been writing to these magazines everyweek, - Banah on Jun 7, 2004, 3:50 PM

Reader's Digest, O Magazine - Banah on Apr 28, 2004, 2:35 PM

I've been writing to these magazines everyweek, - Banah on Jun 7, 2004, 3:50 PM

I'm also going to be asking the shows/magazines to... - Banah on Jun 20, 2004, 10:20 AM

OK, I just need to find a couple of more addresses... - Banah on Apr 20, 2004, 9:56 PM

Banah, FYI-we need to write to her! - becky on Apr 13, 2004, 11:50 AM

great idea! - Kristin on Apr 13, 2004, 12:00 PM

COOL!! Does anyone know where we can find - Banah on Apr 14, 2004, 9:23 AM

LWC (letter writing campaign) MAIN points list here: - Banah on Apr 11, 2004, 9:58 PM

Here is a link - becky on Apr 12, 2004, 10:16 AM

Great info! - Banah on Apr 12, 2004, 11:02 AM

I like the idea of writing a quick and to the point letter and including - Monica on Apr 12, 2004, 11:32 AM

quickly typed thoughts... - Kristin on Apr 13, 2004, 12:15 PM

I like these ideas a lot - Banah on Apr 14, 2004, 9:39 AM

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