Trisomy 21 Online Community
   
     

ABOUT FORUMS


www.trisomy21online.com

All rights reserved on
the design & content of
this site 2003-07.
Pictures, personal stories
and experiences on this
site are the property of
the owner and may not
be copied or reproduced
without written permission.
 
Site hosted by
Fortune City.
Forums hosted by
Network 54.

Site designed and
maintained by
Katrina.


 
 
We are a group of friends who have come together because we share the common bond of caring for someone who has Trisomy 21. We are here to share therapy tips, medical issues, laughs, accomplishments and yes, even frustrations. We embrace what Trisomy 21 has brought into our lives. We feel that it has taught us to appreciate the true meaning of life. We count our children as blessings! We will fiercely protect them and fight for their lives to be valued just as all other peoples' are. We share our pictures, our stories and our hearts here not only to provide friendship and support for each other, but also in the hopes that others will open their minds and their hearts to our unique children and, in turn, make a better world for everyone.
 

 Return to Index  

My thoughts on this

July 7 2006 at 3:33 PM
Susan  (Login friendsmom)


Response to Question/Advice about response to cover picture....

 
Jan,

I would say that the sad truth about this matter is that none of us truly "gets" anything until we have lived it.

I understand the position you are in with everyone commenting on Nash being on the cover of the magazine, and you not knowing how to respond. Whether to just say "thank you" or educate the person on the whole story behind the cover. What I can say is that in my situation, with my son Ben, whenever I have felt compelled to educate someone on disability awareness, it has a tendency to back fire on me. It is as if there is some invisible line, that once you cross it, you are doing more harm than good. I start to get all fired up and go on and on, and the person who is on the receiving end of all this, someone who really just made an innocent comment to begin with, starts to look at me like I am crazy or something. So then what good am I really doing for him? Of course you being an attorney might be able to communicate things more effectively. It seems strange to say that too much advocacy or advocacy done in too strong a manner might be counter productive, but it definitely seems that way to me. I was told once that "people are just making polite conversation and comments" about my son Ben, and to assume that the world wants to be educated and informed is offensive and rude on my part, and that nobody wants to be lectured to. I guess that is how I came across to people, as if I was lecturing to them on disability issues. But maybe you could handle this better than I did.

Trying to explain why this cover was so offensive to the down syndrome community to someone who has never lived this siutation might just be too much for the person to grasp, and it is easier just to say "thank you" and move on. I am not sure how much people really want to know.

Again, you are probably much more adept at explaining yourself than I am! Thank you so much for sharing this experience with all of us. I have learned a lot.

Sincerely,

Susan

 
 Respond to this message   
Responses

 Copyright © 1999-2009 Network54. All rights reserved.   Terms of Use   Privacy Statement