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We are a group of friends who have come together because we share the common bond of caring for someone who has Trisomy 21. We are here to share therapy tips, medical issues, laughs, accomplishments and yes, even frustrations. We embrace what Trisomy 21 has brought into our lives. We feel that it has taught us to appreciate the true meaning of life. We count our children as blessings! We will fiercely protect them and fight for their lives to be valued just as all other peoples' are. We share our pictures, our stories and our hearts here not only to provide friendship and support for each other, but also in the hopes that others will open their minds and their hearts to our unique children and, in turn, make a better world for everyone.
 

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Here to help and learn

November 27 2008 at 10:29 AM
  (Login gramjoan)

 

Hi everyone,
My daughter, Sarah, was born with DS. She is now 28 gorgeous years old.
I did not know about this site until just recently. I wish I had known about it 28 years ago. Boy the issues Sarah and I faced then!!
We live in a small community and everyone knows everyone. That can be fantastic and it can be awful.
We are somewhat pioneers here. When Sarah was ready for kindergarten, the teacher at the local school was very supportive and excited about having Sarah. The principal, however, called us to say if Sarah hadn't "adjusted" to kindergarten in a week, she would have to be pulled out.
Well, wrong thing to say, (right moms)???
I simply asked if all the children would be "adjusted" in one week. End of that discussion!!
When I wanted Sarah to try soccer, I sponsored the team (much cheaper back then). The same with softball and for Girl Scout Brownies, I was the troop leader.
Now, there are programs and very few problems sending children to school or joining a team, etc.
Well, this is becoming an essay so I must stop. I am here to learn and to offer my assistance and advocacy to anyone.
GramJoan

 
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