I posted to you on the General Discussion board and just want to make sure that you read that. I think you can email me direct from this website personally if you want to. If not I will leave my email address for you later. Where are you located at? I would definitely find someone with lots of experience and preferably someone who has done this surgery on someone with Down syndrome. I have to get to work, but I will check back later.
For now - hang in there best you can!
Lisa
http://photobucket.com/albums/v442/LisaLisa627/
