Re: scoliosis surgery recommended for our daughter

HI!

Just saw your post on the message board and am excited that I can actually give somebody some advice on this subject. We originally went to Children's Hospital in Buffalo, NY and scheduled the surgery ... we felt we had no choice. The doctor there was willing to do it and had experience, but had never done it on someone with Down Syndrome. right after that we were contacted by Shriner's as we had applied to be seen there for a 2nd opinion at the Shriner's Hospital in Erie, Pa. We had our first appt. there last July. We decided to go with Shriner's as that doctor did the sergery once a week, although he too had not ever done it on someone with Down syndrome before. Kurt had his surgery almost a year ago ... October 2006 and we are sure glad we decided to do it and go through Shriner's. His curve had progressed to over 90 degrees right before the surgery. Please feel free to email me and I will give you more details, but right now I will recommed that you follow through will calling Shriner's and trying to get an appointment, if nothing else but for a 2nd opinion. I am not sure where the closest one to Detroit is, but it might even be Erie, Pa also. I know they take a lot of Canadian patients and a friend of a friend who lived in Tennessee took their daughter there. Got to run!

My email is: hoffman@wnynet.net
Barb