Trisomy 21 Online Community
   
     

ABOUT FORUMS


www.trisomy21online.com

All rights reserved on
the design & content of
this site 2003-07.
Pictures, personal stories
and experiences on this
site are the property of
the owner and may not
be copied or reproduced
without written permission.
 
Site hosted by
Fortune City.
Forums hosted by
Network 54.

Site designed and
maintained by
Katrina.


 
 
We are a group of friends who have come together because we share the common bond of caring for someone who has Trisomy 21. We are here to share therapy tips, medical issues, laughs, accomplishments and yes, even frustrations. We embrace what Trisomy 21 has brought into our lives. We feel that it has taught us to appreciate the true meaning of life. We count our children as blessings! We will fiercely protect them and fight for their lives to be valued just as all other peoples' are. We share our pictures, our stories and our hearts here not only to provide friendship and support for each other, but also in the hopes that others will open their minds and their hearts to our unique children and, in turn, make a better world for everyone.
 


  << Previous Topic | Next Topic >>Return to Health/Medical Issues Forum  

Just diagnosed with Celiac Disease

November 5 2007 at 1:25 AM

  (Login ACMommy28)

 
Anyone here have any experience with this?? We just found out of Friday that Carter's test for Celiac Disease came back positive...I am not really surprised but MAN am I ticked off at the docs!! Carter has been vomiting since the day he was born, not to mention diarrhea and constipation constantly. So you would think that the doctors would have run this test at a much earlier date, right? HA! The ironic thing is that I probably have it too!! I went through TONS of testing some time ago for my intestinal issues, and was eventually "diagnosed" with Irritable Bowel Syndrome. Nobody even mentioned Celiac to me...I didn't even know it existed until two days ago! I think that I have had a lot of questions answered by this!!

Anywho, does anyone else's little ones have this? How difficult is it to adjust to? After doing a lot of research it seems like this is going to be a HUGE lifestyle change for us! Is it as hard as it seems?

I know that Carter's blood test could have come back much worse than it did, so for that I am extremely greatful! But I really wasn't expecting this, and knowing that there is going to be yet another specialist and even ore appointments is somewhat daunting, to say the least! I hope I don't sound like I am whining, as we have been really blessed so far (knocking on wood) with Carter's health.

I just pretty much wanted to know how this has affected other families...

Thank you all so much!!


 
 Respond to this message   
AuthorReply


(Login MommyKatrina)
Forum Owner

Jeannette, post this on the main board (General Discussion) ...

November 7 2007, 5:17 PM 

off the top of my head I know Tarenne (Nicole's daughter) has celiac and I'm sure she'll have a ton of info for you. Also, locally, Amanda (Audrey's mom) has celiac. And in case you didn't know and are looking for meal ideas, Epicure Selections products are all gluten free (except for some of the hand soaps and the cheese chive and bacon dip). I sell Epicure if you'd like to see a catalogue

Katrina, mom to Kristina, Brant, and Owen





Family Website      Blog     Digital Scrapbook


 
 Respond to this message   

(Login raysmom)

only some changes

January 14 2008, 2:45 PM 

my sister's husband was also recently diagnosed with Celiac's after years of thinking it was IBS. She makes bread for him out of tapioca flour, there are many gluten-free cereals out there, and she is very careful about processed foods since most are not gluten free. He still eats meats, veggies, fruits, potatoes, rice - it's just the wheat gluten that is the problem. There are many pre-mixed gluten-free "flours" made of rice or soy or even almonds - you just have to find one you like. She's made a cake once, but cheesecakes without crust seem to be better. It made an instant change in his health!

 
 Respond to this message   
Current Topic - Just diagnosed with Celiac Disease
  << Previous Topic | Next Topic >>Return to Health/Medical Issues Forum  
 Copyright © 1999-2009 Network54. All rights reserved.   Terms of Use   Privacy Statement