My son was born in Jan 08 with DS and an imperferated anus. He was immediately taken to a medical center and had a double barrel colostomy performed. We are having this reversed in Aug and in Sept with two surgeries.
I'd like to know if anyone else has a child that has gone through this and how the surgery was to reverse the colostomy.
Thanks
Amy B.

Put this as well in the general forum . If there is anyone with info, they will probably see it there. Not everyone will check this area but the general forum is very active and checked several times a day by most. I bet someone will be familiar...Thanks for keeping my munchkin and let me know when I can do the same....

Amber=)

but I know some kids have and I believe the surgery is pretty routine. How is your son doing now? We'd love to have you join us on the General Discussion board so we can get to know you and your little guy!

Katrina, mom to Kristina, Brant, and Owen





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My daughter was born in November 07, five weeks early, and was diagnosed right a way with an IA. She doesn't have DS or any other birthndefects or disorders which our doctors said was a little unusal.. anyway she just had her third and final surgery on July 14th 2008 to reverse her colonostomy.

All went well, but it was hard as they wouldn't let her eat, understandable before surgery right.. but even after surgery she didn't get to eat until about 4 days later and then they would only let her have 2oz at a time, they kept saying they wanted her to poop something out first.

Its been two weeks since surgery and she is doing great at home and stitches have gone and now has a nice scar there.

Not sure how you're surgeon will go about closing it as everyone is different
Ours is Doctor Multon at the Childrens hospital Denver. And he chose a lose closure. The hardest of all of these things were the dialation of her new anus that we had to do from the time of her second surgery to the day of her last surgery.

We are not sure if that will be continued until Friday when she sees him for a follow up and I truly hope not, that was hard to puposly hurt my baby by sticking something up her but but it had to be done right.


I wish you the best of luck and from what our surgeon told us is that children with IA's typically go on to live normal lives, just need to watch their diet more as they will constipate more often and later in life may have a problem with incontance.

Take care,