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We are a group of friends who have come together because we share the common bond of caring for someone who has Trisomy 21. We are here to share therapy tips, medical issues, laughs, accomplishments and yes, even frustrations. We embrace what Trisomy 21 has brought into our lives. We feel that it has taught us to appreciate the true meaning of life. We count our children as blessings! We will fiercely protect them and fight for their lives to be valued just as all other peoples' are. We share our pictures, our stories and our hearts here not only to provide friendship and support for each other, but also in the hopes that others will open their minds and their hearts to our unique children and, in turn, make a better world for everyone.
 

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Re: Good Luck

November 21 2007 at 4:42 PM

  (Login 2kidsMom)


Response to Good Luck

 


Thanks Carol. I appreciate you reading and commenting on my pre-school transition threads. I wonder if I'm the only one who has had this much trouble? Is there something wrong with ME or my school district or what? No one else seems to have/or have had these issues. ??

I was right. That classroom was full of kids in wheelchairs, gait trainers, standers, and getting tube feedings, meds, etc, etc. Obviously not the LRE for Johnny (or any kid) Even if Johnny still had a need for some/any of those things, I would want him in a more "regular" room! There WERE peer models, but sadly, not ones that demonstrate the clarity and patterns of speech I'd prefer Johnny to speak!

I asked why they would want us to view this classroom and how they thought Johnny would benefit from it more than the other two we'd viewed and she said it was a 4 hour program vs. a 2 1/2 hr program since I'd expressed that I want his feeding skills worked on in school. They have breakfast and lunch in that 4 hours but no snacks. ??? Johnny still gets breakfast, mid-morning snack, lunch, mid-afternoon snack, dinner, and bedtime snack. Even Myla still gets a mid-morning snack in her Kindergarten class so I'm not sure what that is all about.

Here's the plan. I want him to go to the second room we viewed WITH an aide who could taper off as his skills, independence, motor, and safety/health issues warrant, and have one meal and one snack there that the could focus on working on his feeding skills with him. Is that too much to ask for? Really...

Off to enjoy a nice Thanksgiving holiday with my family.


Johnny's Journal: http://www.caringbridge.org/oh/johncamden/index.htm>


    
This message has been edited by 2kidsMom on Nov 21, 2007 4:54 PM


 
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