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We are a group of friends who have come together because we share the common bond of caring for someone who has Trisomy 21. We are here to share therapy tips, medical issues, laughs, accomplishments and yes, even frustrations. We embrace what Trisomy 21 has brought into our lives. We feel that it has taught us to appreciate the true meaning of life. We count our children as blessings! We will fiercely protect them and fight for their lives to be valued just as all other peoples' are. We share our pictures, our stories and our hearts here not only to provide friendship and support for each other, but also in the hopes that others will open their minds and their hearts to our unique children and, in turn, make a better world for everyone.
 

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In PA...

November 24 2007 at 10:51 PM

Sharon, Mommy to Marco and Ava:-)  (Login sharrae)


Response to Other Options of Schooling? What is the school districts' responsibility?

 
if you choose a private preschool within the district limits, then they are required to provide the needed therapies. However, you are responsible for paying any tuition. BUT, I do think a fight could occur to somehow get it covered by someone, I just didn't need to look that far as he is currently in public. I am sure someone out there could help ya!

Also wanted to touch base a bit about the one-on-one. I just read Vicki's response to you relating to the worry of dependency. I can absolutely see that as something that could happen with Marco. He is a bugger and would wrap anyone around his finger if he knew he could. I am fortunate in that I FOUND his one-on-one and she is very clear about my expectations for Marco. In fact, she is probably at times a bit more stern than even I am. You know how it is when you have other children, you might give in earlier than you should. I was at his school just this past Wednesday and am soooooooo pleased with what I saw. My hopes for Marco this year were that he learn to receive and respond to direction and that he learn and adhere to routine. Let me tell you...those things have already occurred only 2 and one half months into the deal! He is doing awesome and I've no reason to doubt Johnny will do the same! I do hope to begin weaning him from the one-on-one, but not until next year. I really feel that it is important that Jess stays in place through this year as Marco is not a fully participating member of the classroom and needs someone shadowing (which is exactly what she does) him in order to continue helping him learn and undersatnd the dynamics of a classroom.

I wouldn't be too concerned in the fact that he hasn't started yet and in fact I would kind of encourage you to hold off until after Christmas break. As a teacher I know that this time of the year is so exhausting and challenging in so many ways with the holidays right around the corner. Plus, you want to keep in mind that Johnny would just get started and then have an extended break. Not knowing how he might adjust to school, this could be detrimental. Of course, it may not be, but is that a rsik you want to take? Marco technically didn't start school until he was 3 years, 3 months which is what Johnny would be in January right?? Just a few thoughts! You can ignore them if you want

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