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We are a group of friends who have come together because we share the common bond of caring for someone who has Trisomy 21. We are here to share therapy tips, medical issues, laughs, accomplishments and yes, even frustrations. We embrace what Trisomy 21 has brought into our lives. We feel that it has taught us to appreciate the true meaning of life. We count our children as blessings! We will fiercely protect them and fight for their lives to be valued just as all other peoples' are. We share our pictures, our stories and our hearts here not only to provide friendship and support for each other, but also in the hopes that others will open their minds and their hearts to our unique children and, in turn, make a better world for everyone.
 

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Ok, I'm going insane, pls tell me my child isn't the only one...

January 8 2008 at 1:50 PM

  (Login coolmommy99)

 
who completely IGNORES me, when I ask her to do a simple task or try to tell her NOT to do something. Argh!!!! It's like she's feigning deafness, only I know she's not. I can whisper her name from across the room and she'll turn towards me, so I know he she hears fine. Ugh, I hate the "selective hearing" thing we've got going on. I thought her behavior issues would be resolved (at least a little bit) by getting her thyroid re-checked & making sure she was on the correct dose. We've been on the new regimen for over a month now and not much has changed. Time-outs really don't work because I also have Katie toddling around getting into everything, so I can't always sit by Sarah & make sure she stays where she needs to be. I find myself YELLING to make myself heard, but that goes on deaf ears as well. And even when it's something serious, like trying to get a knife out of the drawer, she acts like she can't hear me. It's not like I micro-manage my kids' daily activities. They have plenty of free time, where they can make a huge mess of their toys if they want to. I let them feed themselves, because they refuse to let me feed them, even though it usually ends up in a huge mess. I thought I was giving them enough freedom where they didn't feel stifled. I don't "think" I'm giving them too much freedom either. I don't know. Does anyone have any tricks that they can share with me? Cause mine aren't working anymore.




Amanda
Wife to Jeff



Emma 12/10/99
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Sarah 4/20/04
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Katie 6/8/06
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http://coolmommy99.blogspot.com
http://web.mac.com/wilso4jm



 
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