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We are a group of friends who have come together because we share the common bond of caring for someone who has Trisomy 21. We are here to share therapy tips, medical issues, laughs, accomplishments and yes, even frustrations. We embrace what Trisomy 21 has brought into our lives. We feel that it has taught us to appreciate the true meaning of life. We count our children as blessings! We will fiercely protect them and fight for their lives to be valued just as all other peoples' are. We share our pictures, our stories and our hearts here not only to provide friendship and support for each other, but also in the hopes that others will open their minds and their hearts to our unique children and, in turn, make a better world for everyone.
 

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Re: Ok, I'm going insane, pls tell me my child isn't the only one...

January 10 2008 at 9:08 AM

  (Login 2kidsMom)


Response to Ok, I'm going insane, pls tell me my child isn't the only one...

 

Johnny's hearing impaired but still has selective hearing.

I do understand your frustration.

Have you tried giving her enough time to respond to the command as well as giving a simple, one step command in a low and firm voice without a lot of extra "wordiness" in the order? I think I got that from Susan People's book "How Children With Down Syndrome Learn". (I think that is the title...something like that)

For example: Instead of saying "Johnny, do your pants need changed? Are you wet? Stand up, go get a diaper, and bring it to Mommy" I need to totally cut out all the extra sentences and words and say, "Bring Mommy a diaper". Then let it sink in for at LEAST 30 seconds to one full min. or so. I may need to repeat the exact same words a couple of times. It's not that he's being bad, not listening, or disobeying (sometimes ) but he is processing what I said, what he's heard, what he's going to do, and then how he's going to do it before he brings the diaper to me. That's a lot going on!

NOW, that said, there are times I tell him something and he will look at me, stand up and bolt high speed into the other room and shut the door behind himself laughing. That is just a three year old thing....


Johnny's Journal: http://www.caringbridge.org/oh/johncamden/index.htm

 
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