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We are a group of friends who have come together because we share the common bond of caring for someone who has Trisomy 21. We are here to share therapy tips, medical issues, laughs, accomplishments and yes, even frustrations. We embrace what Trisomy 21 has brought into our lives. We feel that it has taught us to appreciate the true meaning of life. We count our children as blessings! We will fiercely protect them and fight for their lives to be valued just as all other peoples' are. We share our pictures, our stories and our hearts here not only to provide friendship and support for each other, but also in the hopes that others will open their minds and their hearts to our unique children and, in turn, make a better world for everyone.
 

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I got yet another SIKE today!

November 22 2005 at 3:52 PM

Mandi  (Login IviRae)

 

The doctor that I thought was coming to make the arrangements for transport and admission to Miami Children's Hospital, well, had other ideas! Including... consult with and ENT, repeat Echo, repeat swallow study, thyroid check, follow up with surgery, and well, more time at this hospital, and possibly, go home instead of heading for heart surgery.

Of course, I am just so ready to get the heart surgery over, that this is not ok. But, whatever...doctor's know best, right?

Hope everyone is well, and Dj sends a big smile to all his T-21 buddies!


Mandi,
mommy to DJ (David Jr.)
4/14/05, Trisomy 21

 
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