Wow I read your post and it could have been mine! I am Lisa mom to Lily who just turned 2 in October! I found this board when I was 20 weeks pregnant and found out that Lily would be born with T21. Lily's sperm donor also has never been involved in her life - we broke up 2 weeks before I found out I was pregnant and he is a total loser! Needless to say - like you - it is his loss definitely not ours! Lily also had an AV Canal and went into heart failure at about 3 1/2 months old. She had been on lasix since her birth and then they added aldactone. She had her surgery in April of 05 and is still on Captopril and Lasix for mitral valve leakage. It is too early to tell if she will require another surgery or not, but she is doing really well! We go for her cardiology check up next week.
I am glad you found us here!!!
Lisa
http://photobucket.com/albums/v442/LisaLisa627/
