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We are a group of friends who have come together because we share the common bond of caring for someone who has Trisomy 21. We are here to share therapy tips, medical issues, laughs, accomplishments and yes, even frustrations. We embrace what Trisomy 21 has brought into our lives. We feel that it has taught us to appreciate the true meaning of life. We count our children as blessings! We will fiercely protect them and fight for their lives to be valued just as all other peoples' are. We share our pictures, our stories and our hearts here not only to provide friendship and support for each other, but also in the hopes that others will open their minds and their hearts to our unique children and, in turn, make a better world for everyone.
 


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HELP

October 15 2005 at 11:06 PM

  (Login IviRae)

 
DJ is still in the hospital, five days now and no end in sight.
I think I might lose my mind!
He is still on oxygen and his g-tube is leaking around the stoma. they think it is because of pressure from the labored breathing and horrifying cough. So hopefully, by the beginning of next week we will see an end in sight.

How do I continue to deal with this? He looks so small and helpless and can't tell me it hurts, but I know it does and he is miserable and I am away from family and lonely.

Just remember us.... Thanks, you all are great.


Mandi,
mommy to DJ (David Jr.)
4/14/05, Trisomy 21

http://pg.photos.yahoo.com/ph/mommy2bri_dj/my_photos



 
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Dani
(Login mommy2huntermarie)

Mandi I am so sorry

October 17 2005, 10:12 PM 

you are going through this and alone. I am keeping you and little DJ in my prayers that he will recover quickly so you can get home to family. I don't have alot of experience with this as Hunter hasn't had any health problems other than colds and such. I can only imagine. Stay strong and remember we are all hear to lend an ear and send you the prayers you need.


The WeatherPixie

[link=http://www.tickercentral.com][img noborder]http://www.tickercentral.com/view/fhu/1[/img][/link]







Your URL is http://www.babiesonline.com/babies/h/huntermarie

 
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