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We are a group of friends who have come together because we share the common bond of caring for someone who has Trisomy 21. We are here to share therapy tips, medical issues, laughs, accomplishments and yes, even frustrations. We embrace what Trisomy 21 has brought into our lives. We feel that it has taught us to appreciate the true meaning of life. We count our children as blessings! We will fiercely protect them and fight for their lives to be valued just as all other peoples' are. We share our pictures, our stories and our hearts here not only to provide friendship and support for each other, but also in the hopes that others will open their minds and their hearts to our unique children and, in turn, make a better world for everyone.
 


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Update on DJ

November 10 2005 at 5:52 PM

Mandi  (Login IviRae)

 
The doctor told me today, that even though the cardiologist won't say for sure, we are certain it is his heart causing all the problems. He is having a hard time, and really needing the help with oxygen. Now, will he get better, I don't know, I don't know what is going to happen. We may be in and out of the hospital till he is big enough to have the heart surgery. This time, all I know is, that he is not letting them wean him off the ventilator. And Thanksgiving and Christmas are right around the corner. And, of course, I am a basket-case. I don't know how I am going to make it through this time and I feel all alone. All the words of encouragement on here really do help. Thank you guys again.
I'll keep you updated.


Mandi,
mommy to DJ (David Jr.)
4/14/05, Trisomy 21

http://pg.photos.yahoo.com/ph/mommy2bri_dj/my_photos

 
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Mandi
(Login IviRae)

Updated update on DJ

November 11 2005, 5:20 PM 

Spoke to the cardiologist today, he has pulmonary hypertension, so the asd murmur is helping and when the pneumonia goes away, we will figure out if the hypertension is from the pneumonia, or if we need to treat it. Until it goes away, we won't touch the asd.

SO I finally got some answers, and I feel a hell of a lot better!
Here's an older pic of dj, I can't get it to come up any better, any tips, let me know!

?phI6RdDBijpBV0GD

Thanks for all your support, you guys!


Mandi,
mommy to DJ (David Jr.)
4/14/05, Trisomy 21


 
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(Login mommy2huntermarie)

Keeping you in our prayers

November 15 2005, 10:46 PM 

Hoping little DJ is on the mend soon so you can figure out where to go. I am so sorry you are having to go through all this and I understand with the holiday's and all. Just know that you will be in our thoughts and prayers.


The WeatherPixie

[link=http://www.tickercentral.com][img noborder]http://www.tickercentral.com/view/fhu/1[/img][/link]







Your URL is http://www.babiesonline.com/babies/h/huntermarie

 
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Mandi
(Login IviRae)

Newest news

November 16 2005, 4:06 PM 

Dj is off the vent! And doing well! He'll have an EKG to determine if or when we can do the heart surgery. Hopefully ASAP, I'm anxious to get it done and get home! But he's doing good, and they know what they are doing. I'll try to always keep you guys updated. You guys mean so much too me, keep me from feeling too alone.

Mandi,
mommy to DJ (David Jr.)
4/14/05, Trisomy 21


 
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(Login mommy2huntermarie)

Mandi that is great news

November 17 2005, 12:26 AM 

so glad to hear DJ is doing better will be praying they can do his surgery ASAP and get him feeling well again.


The WeatherPixie

[link=http://www.tickercentral.com][img noborder]http://www.tickercentral.com/view/fhu/1[/img][/link]







Your URL is http://www.babiesonline.com/babies/h/huntermarie

 
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