Hi! Introduction.

I just found this board. I post some on Unomas and NADS. Not too regular on either.

Lets see, I am a SAHM to Wheatley(7) who is homeschooled. Veronica is 23 months old with Down syndrome. She was born with a complete AV canal which she had repaired at 3 months she just had a second repair of her cleft mitral valve at the Cleveland Clinic when she was 18mo. It has been a very trying time for us. Veronica is developmentally around 9-12m. She is a butt scooter, has two signs, one word(Mama), and is starting to pull up to stand. She has services through Early Intervention - ST & OT once a month to every three weeks. I am not to thrilled with having the interuptions and Veronica has shown me many times she will do things when she is ready not when I want.

Healthwise she is doing okay. She has moderate leakage in both valves and now her right atrium is enlarged. But we were able to cut back on her lasix. She is on the closely watched follow-up program - every 6m to the cardio.

I guess that is about it. We also plan to homeschool Veronica.

I look forward to meeting everyone here.

Christi
Wheatley(7) and Veronica(23m)