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We are a group of friends who have come together because we share the common bond of caring for someone who has Trisomy 21. We are here to share therapy tips, medical issues, laughs, accomplishments and yes, even frustrations. We embrace what Trisomy 21 has brought into our lives. We feel that it has taught us to appreciate the true meaning of life. We count our children as blessings! We will fiercely protect them and fight for their lives to be valued just as all other peoples' are. We share our pictures, our stories and our hearts here not only to provide friendship and support for each other, but also in the hopes that others will open their minds and their hearts to our unique children and, in turn, make a better world for everyone.
 


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everything!

January 19 2007 at 10:50 AM
  (Login jenny123712)

 
i am a 22yr old mother of a 6month old kaylee rose. she is amazin in every way. but i do have some concerns as im sure everyone else does. but i am concerned that she ay not be able to crawl or speak or anythin like that until she is older. i am wonderin if maybe i should start lookin into therapies for her or not or what i should do. she can speak a little bit, but its just blabbles. she tries to crawl, but cant grasp it even if we try to help. but i just want to know what others have done to help their children, or am i just too nervous and worried about it that i should just back off alittle bit?

please help me to understand what to do better and make me a better mother and her a better child.

thanks so much if everyone can help.

 
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AuthorReply


(Login mhart71)

Re: everything!

January 20 2007, 2:13 AM 

Hi! I have to say that I believe that Garrett got so much out of his therapies. He started with Physical therapy once a week when he was 2 months old. We also had him in speech therapy and occupational therapy later on as he got older (he's 4 now). He started walking when he was 2 and he's really starting to talk a lot now. We did do a lot of sign language with him and we started it with him young, even though he didn't sign back right away, he was still taking it all in and learning it and it made a huge difference with him being able to communicate with us. The therapies can be overwhelming at first; I know there were times when I hated having people coming to my house and telling us what to do...but looking back I see what a difference it made!



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This message has been edited by mhart71 on Jan 20, 2007 2:17 AM


 
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(Login walton111)

Re walking, etc

February 15 2007, 8:43 PM 

Hello! I am the nana of a 8 month old twin who has Down Syndrome. Randy started Occupational Therapy at home when we was about 4 months old. At 5 months he started Physical Therapy at a Heartlands Rehab for Kids. At 7 months he started speech.

You should really check with the county and find out what is offered in your area. There are funds available if you can afford therapy or the state doesn't cover it.

Baby Randy was 2 months premature and at 8 months had heart surgery to close the 2 holes in his heart. He isn't crawing or sitting up by himself yet (his twin is sitting up).

I was also wondering what state you live in. Florida has a Early Intervention Program.

 
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(Login AngelsMommy)

Re: everything!

November 10 2007, 10:40 PM 

im surprised the hospital did not give you information regarding programs in your area..

the hospital i delivered at gave me all kinds of pamphlets and all that and i called around.. looked on the net.. what state are you in?? if you are in california i can give you a list

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Thanks!!

Roselle

 
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(Login BECKY061502)

Re: everything!

April 3 2007, 4:05 PM 

I am 27 and I have a daughter who is now 13 months. We started her in therapy right away and I really think that it helped her. She goes to physical therapy 2 times a month. she also goes to speach therapy/feeding therapy once a month and she is doing very well. She babbles and is starting to sign. She is also starting to walk while holding on to the table.

 
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