I`m not a real frequent poster but been hanging around for going on 2 years. Not sure if anyone would remember this about me, but I have some major on-going medical issues, mainly Lupus & pulmonary hypertension. On the squalor situation usually some form of upper to lower one, mostly clutter that my kids help a lot with (making & picking up both) they are ages 9 & 13

Anyway whats flipping me out right now is that I picked up a form of autoimmune hepititis about 2 weeks ago, my liver is basicly shot. Spent about 10 days in the hospital working on getting enzymes down to more normal levels, got down enough to let me go home, but still in bad shape & very edemic. Its bad enough if I didn`t have all the other med. stuff going on they could be listing me for transplant. The only treatment they really need me on for right now is prednisone, fairly high doses for several weeks. Problem is pred. really messes with my head. Best analogy I can think of is that it feels like someone has messed with my life`s graphic options & I can`t get normal back.

I get short bursts of normality here & there, but its going to be weeks before I can get off of it, IF its still working. My preceptions are all squewed & I feel like I`m not having normal reactions to anything, haven`t tried even driving yet. My sanest instincts seem to be to den away from everyone, but trying to make myself accessable as much as possible when kids/DH are home.

Going to be having regular medical checks to make sure this all is working & I do have good support from my parents to get me to appts, but this is terribly tough on my own family who has to put up with me ghosting around.
Anyone been through something similar or willing to offer a guiding voice here & there would be much welcome.

Having a little trouble navigating new boards, but kind of gettting the hang of things & I will be reading if not always up to posting. Thanks

...but sending {{{hugs}}} and prayers for you !!

~Smooz~

and i'm sorry i don't have real concrete advice for you (altho' i've known psychosis, it was pure me, no steroids involved )

however, your post reminds me to be kinder to my 4 yr old, who takes prednisone semi-regularly & is having some real behavior issues right now. thank you for telling me what it's like, with grownup words.

my ex sil has lupus and it has been a rough ride. i will pray for strength and lucidity for you.

susan

Thank you, I was feeling like like this was going to be ignored or taken as trollish because its too whacked. I really screwed up getting out of the hospital too soon wanting to be here for my family without proper mental safeguards in place.
I just kinda need a thread to anchor myself here & there when I feel I`m losing it.
Prednisone can be a wonder drug, but if your kid is on it long-term its hard to know where his/her preceptions are at. Hopefully not a long-term sentance for either of us. I`m looking at about a month so far at least.

(((Sleepymom)))
I don't have any advice for you, just a big hug, I know how it feels! It is not fun. Last year I was on steroids for awhile. The first couple months were great but then it felt like I had a permanent case of very evil PMS. The good news is that after I stopped taking it I returned to my old self, thank goodness!