it is very rare and causes rapid aging and baldness and i met a lovely little sweetheart with this disease recently....

'Missy'...ius a girl who made me just smile and smile and smile.

he life expectancy is around 13 yrs....she is now 9.

life is precious.....we should remember this each day and each minute.

something to think on.

btw....Missy has more love and life in her...than i ever have had.

what precious jewel she is......


gerard

btw.....i am glad i met her....she has touched my life and made me a better person because of it.

I've seen children with this disease on TV a few times. Heartbreaking .. here is the website of one of the oldest:

http://www.leonbotha.com/