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Hi there I am new here I have a almost 6 year old that has spasctic quadraplegic Cerebral Palsy. She was diagnosed at 15 months. She was born at 25 weeks and weighed 1lb 7 ounces was in the NICU for 3.5 months. When she was 3 weeks she came down with Ecoli menigitis and they said that is what caused the CP. I would love to get to know you all.I don't have a support group in my area.Is it only me or is it normal to go through what I call the trying emotional phase. I know that kayla is the way she is for a reason and that everything happens for a reason. And that she is definiteyl a miracle but last week I was just balling all the time. It gets so frustrating sometimes t osee other kids able to do things that she can't like run and play and things like that. But all in all she is very happy. she has and evaluation at schriner's in schreveport LA August 13th to see if there is anything they can do to help her. I just have to keep the faith and keep praying.

Thanks for listening and letting me vent.
here is kayla's web page if you want to check it out
www.geocities.com/lilrugrats_mom/index.html
click on the link that says my miracle baby

Posted on Jul 15, 2001, 9:45 PM

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