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We are a group of friends who have come together because we share the common bond of caring for someone who has Trisomy 21. We are here to share therapy tips, medical issues, laughs, accomplishments and yes, even frustrations. We embrace what Trisomy 21 has brought into our lives. We feel that it has taught us to appreciate the true meaning of life. We count our children as blessings! We will fiercely protect them and fight for their lives to be valued just as all other peoples' are. We share our pictures, our stories and our hearts here not only to provide friendship and support for each other, but also in the hopes that others will open their minds and their hearts to our unique children and, in turn, make a better world for everyone.


 

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Getting services outside the school system????

February 15 2006 at 5:25 PM
Christi  (Login chrfathOH)

 

I am having a hard time accepting the fact that we will get no assistance or help once Veronica turns 3 in a few short months.

I have been brainstorming with our EI person to see if we can work with MRDD rather than the school system. Just to make sure we can still get money for respite care and other funds we are entitled too. We just don't want to get sucked into the school system and someone telling me "put her in school" every time we meet. Our EI person totally supports our homeschooling and knows all will be well for Veronica. With our without their help.

I am torn, I don't know how things will pan out. I am not really looking to get services/therapy for Veronica. But to make sure we can stay in the system and take advantage of our tax dollars. But I don't want to do an IEP and have to have her tested. I am so confused.

Anyone else have anything to share in this regard?

Christi
Homeschooling mama to Wheatley(7) and Veronica(2)

 
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