HI I'M SWASY
I FOUND OUT JUST A FEW MONTHS THAT ALL MY ACHES AND PAIN AND DIFFICULTIES TO MOVE AROUND AND TO DO CERTAIN THINGS IS BECAUSE I AM A POST POLIO VICTIM, I CANNOT SHARE HOW DIFFICULT MY TEENAGE YEARS HAVE BEEN, THE HUMILIATIONS FROM FRIENDS AND FAMILY ALIKE, SOME ASKING WHY U WALKING LIKE THAT, WHILE OTHERS JUST USE IT FOR HUMOR TO PAST TIME, WHILE I AM PRESENT...[WHILE I WISH I WAS DEAD]
OH HOW I WISH I HAD KNOWN, WHAT I KNOW NOW
IF I HAD NOT ACCEPTED CHRIST AS MY SAVIOR, JUST 1 YEAR BEFORE MY CALAMITY, I KNOW I WOULD HAVE GIVEN UP A LONG TIME AGO
I AM TELLING U EVEN THOUGH I CAN WALK, IF I DONT HAVE TO GO SOMEWHERE I DONT GO
I NEVER TALK ABOUT IT, I HAVE BEEN RIDICULE ENOUGH FOR SOMETHING THAT I COULD NOT HELP..I AM ALMOST 40 NOW, AND IT HAPPEN WHEN I WAS ABOUT 13+
SORRY FOR BORING U ALL
I JUST NEED A FRIEND TO TALK TO ABOUT THESE THINGS I GUESS
Hello
I thought no one was using this forum, after posting and getting no response, so i just gave up visiting, so can u imagine how happy I was to see i got a message.....
Ofcourse I want to talk
Cant wait..........
I know how you feel. I've had my disability since I was almost four years old and it was difficult for me in school and even now when I'm walking at work or in a store I'll hold my head down as it is hard for me to look at people staring. I understand why they're looking but still it hurts. One thing for sure though, once people get to know me they hardly even "see" my disability....they see me for me...LOL. Life is good and I've been blessed, hang in there and I hope to get to know you even better.
Hi, I to will be glad to talk to you anytime. I am from Georgia, born here and grew up here and still here! ;-) I came down with polio when I was three years old.. back in the old days of 1953. I do understand about the way people are to you and even family members. Just know you are not alone and I am happy to hear you have found the Lord also.
Here and ready to make new friends.
Milbrey ( or Laura2...there was another Laura, so I chose my middle name either will do)
up to this day i cannot understand why no-one thought about taking her to a docter, i did not even graduate from high school because at the practise march, i was doing some out of line steps there, while the others were marching properly, so i could not embarrassmyself anymore,
and i just quit going to school, i had completed high school anyways, so i would still get the certificate
Childhood was terrible..now i just hide
swasy
No need to hide Swasy, "There's nothing to fear but feat it's self" Once I quit worrying about what other people felt and made a connection to God things changed and in a big way. Now I surround myself with others that have had to go through life being labeled disabled and I have really made a difference. There's nothing more fulfilling than helping others, especially children! I had a pretty tough childhood myself, but now I try and make the disabled children that I meet understand that their the ones who can change this world. The power of all of us who are disabled is unlimited! People seem to listen to us. Is there anywhere that you can go to volunteer? It will change your life into something Positive and you will be an example to others, so they won't have to suffer. We're all here for you and get in touch anytime that you need us, alright?
I could really use all those cheerful spirit that u have,
it would really do me good
when i said hide i mean if someone invites us to a wedding, i find all of excuses why i cannot go, i now send my daughter shopping, my husband take the 4 year old to school and have to pick her up, i cannot do that though, even though i want to so bad
i really have good reasons why i hide now,since i fell while walking on a pedestrian crossing some years ago, i always have anxiety attack whenever i have to go out, as i know i could have been killed... my heart just keep on pounding, when i have to walk..and if my husband try to force me telling me i can do it..i just start to cry, because i know my feet feel like jelly and the pain is matchless...when i breakdown he said ok ok...By the way no one knows i have polio, my husband knows my legs r getting weaker each day, and i am falling very often, but he does not knows what it is... I JUST CANNOT TELL HIM, IT FEEL LIKE I DECEIVE HIM, EVEN THOUGH I DID NOT KNOW WHAT I HAVE, i guess he would have some good money now if he did not have to spend so much on me, and the fact that i cant even work,my fingers just curled up when they ready and i have to open them, so i became a housewife which he likes, but i know when funds r low he would have prefered if i could contribute, he does not say it, but i am not stupid, he has been building a house since 95, and until now it still no finished, so u see i feel so guilty for him struggling so much..
i use to be very active at church, busy with the youths and so forth, but now i just invite them to lunch now and again...
i believe i have worn u out goodnight
God bless u all
Just like you I had a period in my life where I didn't want anyone to know about my Polio. Once I let go and let God handle everything, my life took a turn around that has lasted to this very moment. You see; God is with you no matter what, He'll see you through anything that gets in the way of your Love for Him. I was just like you, this world is based on being perfect in every way and that includes being physically perfect. I have news for this world, nothing is perfect and if anything at all, I have taken my disability and turned it into nothing less than a direct line of communication to God Himself. He knew that my personality would need a little taming, so to speak, and He did what it took to keep me close to His side. He let me experience a humbling situation like Polio, which would have an eye opening experience to anyone alive. Sure it's tough being labeled as an outcast by a people that do not have to go through life like we have to do, but never forget that everything happens for a reason. God doesn't make mistakes and He never judges Us, He Loves Us. Consider yourself fortunate that you get to travel through life sitting back in the shadows of a very confused situation with what's going on in the world today. There's Lot's of ways that God goes through to get through to His loved ones, and I feel fortunate that He loves me the way He chose, because there could have been a different route for me....We all Love you my friend...
Today while I was doing my devotional I read most of what you are saying to me now.
I know sometimes God allows certain things to happen to us for our own good, and I am very positive that my illness has humbled me,
I am just praying to get enough strength to come off my pity trip, I just need to lay it at Jesus feet, and thats why i believe i found this site, for my emotional and spiritual upliftment
Its good to know u will always be there, to say a kind word....
swasy
It's always nice to hear from you Swasy, its good to know that you will always be part of our family. It sounds like you are feeling better and I'm so glad to hear that! If you ever have any trouble, you know where to go, and that's right here. I wrote you the other day and mentioned the myspace.com/poliosurvivor page and we would love for you to be part of it, if you want to. Lets stay in touch Swasy because I worry about you like one of my sisters, so just drop me a line every now and then, alright?
