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  • Re: I hear you
      • GDSM
      Posted Mar 23, 2008 7:24 PM

      Thanks for the encouraging words, but I do nt have the mesh inside of me any more. what I am experiencing is problems with the nerves that were seriously damsged or destroyed by the Perfix plug and patch. I have been to two Neurologists and they both agree that what I have is called RSD (reflex sympothetic distrophy) or another name for it is Complex regional pain syndrome. There is no cure for this and I am told that it may get much worse and evenually effect my entire leg. I will not rest with that diagnoses and have started my research on this disorder, I just can't believe that I have gone from a very healthy atheletic man to less than half of what I used to be and I will only be 45 in May. All of this because of an operation that should have been as easy as a tonsilectomy. I do believe that it is now time for all of us to band together and begin to make plans to go to Orlando Florida when the next convention hits the United states, if we are still alive.
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