I posted last time saying that I had to do another biospy because during shipping it spilt. I did another one. Today I learned it wasn't enough tissue to analyze, in their word "inconclusive". I spoke to the doctor (pathologist) he said that he couldn't say much about it since it wasn't enough tissue to analyze. He said he saw some tissue... but wasn't enough. Now the secretary said doctor wants to do the sample during hysterscopy. Do you think it is a problem giving that much sample? What do I do to not have any scaring on my uterus?
Finally just to share and maybe to get your opinion too. The lab sent me an email saying if they prefer to charge me the credit card I provided to my (Canada) clinic for the biopsy. I got their number from my immune doctor and then called them. They said since they tried to analyze it I should pay $350 it doesn't matter whether there were enough tissue to do it or not. I don't understand? But what do you think? Do they deserve that money or not?
Please know I had so many failures and money is an issue for me. But no way, I want to take anyone's money. I wonder sometimes if I am griddy and that is why I ask myself if they deserve the money.
Sorry this is so difficult Bharani. I had the same thing happen (pg implied)
April 30 2012, 10:20 PM
The tissue sample my local doc did for the biopsy and sent in was not good enough, inconclusive, they wanted another one, blah blah blah. I had been through enough already and didn't want to repeat the test. The thing they are looking for (high NKs lurking in the uterus) is a theory that is very controversial and was truly not likely to be the problem. I just needed good embryos in the end, that was what finally worked.
As if going through IF stuff isn't challenging enough, you've got people bumbling the tests.
I personally would not pay for a test that provided me no results. I would communicate that fact to the doctor and the lab. It is not your fault that the doctors/lab involved didn't collect the sample correctly.
The lab is located in CA, I think so. The secretary of my doctor said that it is too painful for me and the doctor doesn't want to go 3rd time. She will do at the time of the hysterscopy. I felt since I screamed the first time I think that is what she is talking about. I didn't scream at all the second time but made few low voices.
Regarding the payment. I don't know them the lab and I don't think the RE knows them either. I called Allen BC which they told me the biopsy is done somewhere else. I had to call them yesterday. I don't think my doctor here in Canada can do anything in regard to the payment.
I'm so sorry you are still having difficulty getting results.
May 1 2012, 8:30 AM
How can the clinic make two errors like that?! I do not think you should be responsible for the charges for the pathologist. The clinican who took the sample is at fault. I hope they can resolve the issue for you. Sorry that you will have to go thru add'l testing to get the answers you are looking for. Good luck.
but I can't dare to say to them it is their fault. I already felt that the secretary putting the blame on me. How it was too painful for me to do this thing. I would be fine with paying the shipping and just one time of the biospy, meaning for the second one.
Yes, I went through alot. The last few days have been... I think I aged too b/c of the stress.
First, I wish neither you nor I were going through this hell. I am sorry, please know you are not alone.
Is your clinic taking the samples and screwing things up? If so, honestly, I think you need to consider biting the bullet and finding another clinic. A lot of the things I am hearing suggest they are not trustworthy for this test, let alone a cycle. They have lost things, unkindly demanded payment, and now, not enough tissue?
Second, you are doing the Yale test, right? Not checking for inflammation or infection, right?
I have to tell you, two years ago, I had a girlfriend go through the exact same thing as you with the Yale test -- they lost it twice!
Which also makes me suspicious of them. Now, we have a gal here on the boards who did it, changed her protocol to a slow intro of progesterone, and is now pregnant. However, my RE said he used to do it and found, after trying it 20 times, that it did not improve outcomes.
So, if I were you, I would NOT pursue the biopsy, I would NOT pay for it, and I would consider whether I wanted to try the slow progesterone introduction protocol with or without the Yale results. One thing that confuses me - I thought they checked to see if you were "out of phase" at Yale and then put people on Lupron...but anyway, I may be confusing Yale with another lab that loses everything.
I hope you are trying to take care of yourself, as I am trying very hard to do. Sending you hugs.
I live in Canada and I am working with ABC. You remember when I was looking someone who will work with me and ABC. I found this doctor. I don't know how much experience she has. She is GYN and fertility doctor. So she must have done this type of things. She works with one of the well known fertility doctor.
Regarding the payment I called ABC and they said they arranged the biopsy to go somewhere else and they just received the result. I spoke to the pathologist and he said it was just very small to do analysis on it. I think my RE here they can't do anything with payment. If I do the biopsy while I am doing the hysterscopy which I think I will then I think I should pay for it. But not for now that I don't have result. I don't what to sound that person who complains for money and scream during test.
What do you think doing doing during the hysterscopy? I worry too since now they said the sample was too small she will take huge amount and I am in sleep and can't control how much she is taking? I worry about scaring too.
How are you? It is good to hear that your donor had failed cycles. At least now you think it might be her and not you.
Wednesday, May 2
You know what MInniet. Yesterday night after I finished writing to you and was about to click respond my computer shut off/dead and now it is working. I has been like that lately. It is good to finish reading and responding my thread. It was where I left it when it came back. WOW
Thanks Minniet for everything and I wish you all the best.
Biopsies are so small -- it's the D&Cs and repeat miscarriages with retained tissue, as I understand it, which are something to worry about. I would not worry about a third biopsy -- as long as you are under anesthetic!
Thank you for your note -- wishing us both hope for next steps. It sure feels futile sometimes.
It sounds like it was their mistake, so you shouldn't have to cover their idiocy! It sounds as if they might have a bit of a reputation, so I would research this a bit and then potentially change clinics.
Sucks that you are going through this. My thoughts are with you.
one for fertility and the other for immune. But the immune clinic arrange their stuff to go to another lab. So you can say 3 different places.I got an email again saying to read email. I responded to the sender with red ink writings.
Too many clinic.
I will try to convince the lab not to charge me.
Thanks for your posting
Sorry you're going through this, Bharani. How stressful and anxiety-producing. I can understand being intimidated by the doctor and his staff. It's not easy for those of us who are not accustomed to confrontation, particularly with people in authority roles. It's a learned skill that comes only with practice, unfortunately. I'm much better at it than I used to be, but it still makes my body ring with anxiety to have to confront someone like this.
One idea in pursuing these ideas the other posters have suggested, which are good ideas, is to choose the way you communicate with them. Could you send an e-mail instead? Would that be more manageable for you? Or is there a particular person in the office who is more kind and less brisk and you could request to speak to him/her? Or, if you're calling or talking face-to-face, write out the main few points you want to make beforehand, so you have notes to refer to if you get flustered. Just ideas, but there's no reason such a conversation has to take place in any particular format. YOU and your well-being are the important things here, so pick the way that feels most do-able for you, whether you choose to continue with this clinic or not.
My clinic/ RE made a mistake in not taking enough sample. So they don't have anything to say about the charge unless I am saying the RE to pay.
My clinic is working with another clinic ABC in CA for immune and I think this immune clinic arranged the biopsy to go to another clinic in CA (don't know where). So the two clinic I have at least communication are not the one charging me.
I hope it will resolve. I got another email today saying read below. Which was written that it was done succesfully. Which I said no it was not done and explain who I spoke with and what happened. I hope they will be decent enough to understand this case.
I said to the sender that I will pay when I resend it again. This is the second time I did biopsy and something happened. The first the problem was the shipping and they lost my biospy. So I didn't pay the second time. Now when I go back for third time yes I will pay the shipping.
It is hard (: