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Don't know what to do, mc mentioned

May 24 2012 at 12:38 PM
Maggie  (Login Kari77)

 
After seeing the perinatologist today for the first time I have a big dilemma. I have had 2 previous miscarriages and tested positive for a blood clotting disorder. As a result they have treated me with lovenox and now the new Dr. says to stop it and that the clotting disorder plays no role in my losses. He says they just happen and that 2 really isn't that big of a deal. Although for me, 2 is a big deal and especially when I'm paying for Ivf! My others Doctors say, he is a good Dr.-- I would do what he says.

 
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thesameboat
(Login thesameboat)

I'm on aspirin and heparin (Fragmin) (pregnancy mentioned)

May 24 2012, 1:14 PM 

Ugh, it's awful to not know what to do, isn't it? And I think anyone who's HAD 2 m/c would think it's pretty bad.

My RE OB/GYN (yes, it's the same doc until I am more than 6 months) suggested I come off the heparin. The other OB/GYN (who will hopefully deliver the baby) wants me on it throughout the pregnancy. I told doc #1 and he suggested I stay on until I can go to the hemotology clinic at our city's hospital and get some blood work done.

I wouldn't actually mind staying on it...

Is it possible for you to check with a hemotologist?

 
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Daisy
(Login loochieuk)

Run, don't walk, away from the doctor who wants you to stop! (m/c ment)

May 24 2012, 2:35 PM 

Please don't risk another miscarriage. It is very easy for an ill-informed, non-specialist to play Russian Roulette with your pregnancy/health, but if it were me, I would stay on medication which has been proved to be effective in preventing miscarriages for those with a diagnosed clotting disorder - and that is YOU!!

Lovenox is not only an anticoagulant, there is also evidence that it ameliorates the effect of NK cells and so it is a frontline treatment again losses and you have had TWO too many.

Please I implore you to stay with the advice of the doctor who is treating your clotting issues and taking it seriously.

Also, very important, is to start the Lovenox at the start of your ivf cycle for best effect.

Ask to be blood tested and monitored by your prescribing doctor to make sure that the Lovenox is acting effectively - this is very important.

Best of luck,
Daisy
xxxx


    
This message has been edited by loochieuk on May 24, 2012 2:39 PM


 
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demomone
(no login)

Totally agree with Daisy and glad

May 24 2012, 2:39 PM 

she saw your post.
you need to see a hematologist..you have a clotting disorder that can potentially cause a miscarriage. This doctor has not kept up with current (not so current) findings..I would also question his ability to manage a healthy patients pregnancy.

 
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Maggie
(no login)

Well...I have been to a hematologist

May 24 2012, 5:09 PM 

and he told me specifically that the clotting disorder that I have can cause miscarriage and other complications. He wants me on medication all the way thru 6 weeks postpartum. I have put in a call to see what he says about this new Dr. telling me to stop. After one of my miscarriages we even did pathology on the tissues and found that the baby was chromosomally normal. That makes me even more suspicious about the blood clotting. The only thing that makes me worry is the fact that I have a medium sized subchorionic hemorrage right now and I don't want to make it worse. I just don't want to make a mistake and lose this pregnancy too.

 
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Daisy
(Login loochieuk)

Maggie, I totally understand your fears about the SCH.

May 24 2012, 6:29 PM 

It is so scary and almost impossible to make decisions especially when you have conflicting opinions.


I have 2 clotting disorders and also had an SCH. My specialist did not advise stopping the Lovenox as ironically, it appears that those with clotting disorders may be prone to SCHs, but the Lovenox is still playing an important part in keeping placental blood flowing and keepig the embryo alive.

Specialist advice and care at this stage is vital for your reassurance and you need TLC. It may be that some doctors recommend you stop aspirin e.g. (depending on your clotting issue) but remain on the Lovenox. Can you discuss this with your prescribing doc?

Keeping well rested, lying on left side and keeping well hydrated may be beneficial (certainly psychologically!). Keeping well and regularly monitored via regular scans and regular appointments with the doc. who prescribes Lovenxo also important.

Also, as mentioned before, you need regular Lovenox monitoring blood tests to see how you are doing in terms of clotting and platelet activitey. Hematologist or prescribing doc. should do this.

Keep holding on... it is so hard trying to second guess. My personal experience in London with the leading experty in Factor V Leiden gave me the confidence to remain on my Lovenox and all was well. Please discuss your fears with a specialist.

Sending you much love and hope.

Daisy
xxxx

 
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Daisy
(Login loochieuk)

sorry about atrocious spelling... bit late over here! xxx

May 24 2012, 6:30 PM 


 
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demomone
(no login)

Barge SCH

May 24 2012, 10:49 PM 

I had a SCH and my hematologist took me off the Lovenox for two weeks.
It is dangerous to be on it when you have a SCH..she did keep me on BA. RE's and OB's have NO training in clotting disorders..My OB was in direct contact with my hematologist, as was my RE as well. This takes time and effort to arrange for all of this communication. I got it all in writing prior to my cycle, that they would confer with each other during my pregnancy, as well as my endo and liver doc. It did help that they were all in the same facility and could easily access all blood work.

 
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ks
(no login)

Totally Agree w/ Daisy!

May 24 2012, 3:04 PM 

Screw that idea! Two isn't that big of a deal?? Are you kidding me? I HATE that Dr's don't take 1-2 mc's as a repeat loss or failure to implant as a reason to look for more answers and solutions!

You just keep doing what you are doing. Clotting disorders are known to be a root cause of loss'! And wouldn't it make you sick to stop it and then have a mc? This way you at least know you are doing everything you can to try to eliminate that possibility. And I mean it post on the pink and ask how many women had success because of adding levonox to their cycle...even with mild cases of clotting disorders!

I wish the Drs were making this easier on you! Just remember its your body, you get to make the final decision!

All my best!

ks

 
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DeeinNYC
(no login)

Glad you said it & two sites

May 24 2012, 3:24 PM 

When I read that this Dr. said that two m/c's are not that big of a deal..I rolled my eyes!! Really? It's not a big deal unless you are the one going through it!! URGH!!

ITA with the posts above. Don't stop the Lovenox. The textbooks say that unless your homocysteine levels are elevated you do not need Lovenox. many women would disagree as they have only been able to carry to term with the help of Lovenox. Take a look at the following sites. The first is a Lovenox group at Babycenter and teh 2nd a MTHFR Yahoo group (not sure if you have this but many Dr.'s have said the same thing to those of us with MTHFR.) Good luck:

http://community.babycenter.com/groups/a241035/lovely_lovenox_ladies

http://health.groups.yahoo.com/group/MTHFRPG/


 
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Dee
(no login)

question

May 26 2012, 5:55 PM 

would heparin work just as well as lovenox? Are they the same thing or different?

 
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Maggie
(no login)

Re: question

May 26 2012, 10:02 PM 

The lovenox is a low molecular weight Heparin, so basically the same thing. I think they use the lovenox because it has less severe side effects than the Heparin. The plan was to switch over to Heparin at 35 weeks and then go back on lovenox for 6 weeks postpartum.

 
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Dee
(no login)

thanks

May 27 2012, 1:38 PM 

I plan to take heparin again.

 
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Dee
(no login)

please

May 25 2012, 12:01 PM 

Many of these doctors do not understand how much money we have spent on IVF. They would never understand. Most people don't, unless they've been through all this. Its easy for them to play games with our health. I would do what someone above said: run, don't walk from that doctor. I plan to go on heparin next time if I get pregnant, and stay on it throughout the pregnancy.

 
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