I walked away from my first neuro after he couldn't find a way to relieve the pain in my head. He sent me to a neurologist, who did all sorts of tests and different drugs including putting me on some drug that he said I would be on for the rest of my life.
He contacted the college he trained at for assistance.
Did a number of revisions before I moved on.
The next guy at a different hospital tried a few revisions then said to me,
George I don't know what else to do.
Try this guy. He worked at the same hospital.
He tried his best also.
Revisions, two shunts, 3rd ventriculostomy, 2 ICP's.
A ventricular-spinal shunt. OUCH.
I moved to Florida.
The first 5 or 6 neurosurgeon's I contacted down here after reading my medical history didn't want me as a patient.
My last neuro in NY has a friend in Orlando who is also a neuro & he had been discussing my case with him over the years and he took me on.
I wasn't sure about him and contacted another neuro down here but after 2 visit's with him I went back to see the first Dr.
He wants to put me in an OR to do a shunt tap.
If things don't look good he said he would put in a programmable valve or two.
Remember I have 2 shunts.
He suggested I try pumping my shunt 10 to 15 times once or twice a day.
I pump it 200+ times.
It hurts some but at the same time it makes me feel better.
Enlarged vents as far as I was warned should never shrink.
I wanted the first neuro to drain all the CSF out of my head because I felt so poorly but he warned me that that could cause them to do more harm. Bleeding in the brain.
Long store but after a number things that went on I got my chance to drain all the csf out of my ventricle. I developed an infection in my CSF and had an external shunt for a short while.
That was my chance to over drain my ventricle.
I drained out in 10 minutes what should of taken all day.
Hurt real bad. But I didn't care. I wanted it drained.
They sent me for a CT the next day to see what if anything happened from drianing my brain like that.
Nothing. Not a thing. My ventricle stayed the same size.
At that point they said I had a stiff ventricle and most likely had hydro from either birth or developed it shortly afterwords.
I have tried many migraine meds, Oxycontin, Tylenol & codeine, Vykdin, and many others all without any relief from this non-stop never ending pain.
OK they work better with a glass of Vodka& OJ.
I'm fond of the Polish potato vodka.
The only time I really feel no pain is when they put me out for an operation.
Other then that. My head hurts.