George,
I've had all the sensations you mentioned. Do you also have a consistant "pressure" pain that lies underneath all the other ones? I suspect you do. How about issues with your eyes and ears? I'm having stiffness in my neck and back but my xray shows I'm fine, so I just deal.
I'm tired of just dealing with everything, but you make me afraid to let them "play" now. I feel that if they can't allow my vent to decrease in size, don't tell me it isn't causing me pain. And if they accept I have pain, try to work on the problem causing the pain. Pressure.
I thought of this last night. I have an extremely difficult time in really hot, humid weather and in really cold conditions. Can they cause these extremeties to happen while doing a CAT scan or MRI? Maybe that will help "prove" where my pain is coming from.