Sorry not to have responded sooner - I was in TX on business.
I am sorry that you have had such a hard time lately. Hydro is hard enough on its own without having to deal with some members of the medical community who are uninformed.
I think you will like the staff at LifeBridge. They are smart, certainly understand hydrocephalus, and are trying to develop a good social network for their patients. I was actually at Sinai on the 4th - for their quarterly meeting of people with hydrocephalus. I stopped by on my way out of town and am glad I did.
Anyway, keep your spirits up - you may be very pleasantly encouraged by your experiences at Lifebridge.