I'm still alive, for anyone who wondered. Two weeks ago, I got fed up with my brain enough to give into an idea my nsg had a long time ago: switching to Keppra. My only prominent ongoing neuro annoyance is clusters of simple partial szs, which generally occur with season change, but they can also erupt with sudden changes in weather--rain after a long draught, sun after 40 days and 40 nights of rain (which was the case), ice storm, blizzard, etc. They will be in the numbers of 15-20 most of the time, and this last one I got gave me 15 or so, but the after-effects were even worse than usual--FOUR DAYS of almost no sleep, fever, and general I-wish-I'd-just-die type misery, so when I bitched about it to my awesome nsg (who's known me since I was a month old), he mentioned Keppra again.
I had dismissed the idea of trying another med because the last time I switched, I nearly paid with my life, but I also knew I couldn't keep this up anymore, so two weeks ago this Tues, I started. Today, I go up to full dose (1500 mg), and the next big weather swing (Oct, more than likely), I will probably know if it works.
Please...if you pray, do. I am spent all to hell, and I know it's a temporary effect, but there are others I have that I was told to look out for, so we'll see what happens.
I'm also in a very vulnerable state, which you know if you have been to my (new!) Facebook page. My last experience with switching made me the self-advocacy pitbull I am today, and this is scaring the shit out of me. I DESPERATELY need for this to work.
