Liz,
This neurologist was REALLY knowledgable about the head. He did explain to me what this was, I'm just looking at the fact that I've complained of issues all my life and besides the hydro being diagnosed in 1991 the docs told me all my other symptoms were all "in my head".
Now here I am at age 42 getting all kinds of diagnosis. The hydro I knew about but it's been explained to me alot better recently, then there was the chairi malformation which they thought could be from the over drainage and could be from birth. Then to find out about the gall bladder disease, and now this newest diagnosis.
I have finally gotten over the fact that I was misdiagnosed all these years. The neurologist I saw explained that there are not that many doctors who can read the scans correctly to diagnose this. That statement helped me get over my rage at the medical community in my small town area.
I was just putting the info out there so that others may not have to go through this long process that I've had to go through. It's crazy to not be able to hear, see, or stand but be told there is nothing wrong with me.