A place where adults suffering with Hydrocephalus can
discuss topics related to this condition.
headache help!!!!!!!!!
by
I have a VP shunt. I have had headaches of different intensity since November of '07. A bad one hit me this weekend and into Monday thru Today, Thursday. I was at an ER Wed afternoon for 6 hours, got a head CT, got Percocet, which my 3 doctors don't like me to take normally, because I have many medicines, but I only take it when my head hurts 10/10, which is usually when I rise in the morning first thing or after a long day of standing and I need it before bed. My surgeon has urged my PCP or my neurologist to get me another MRI of my head since the pain can be soo severe that it makes me cry and not eat anything. I haven't had one since January. I see a special neurologist who specializes in headaches (not just my seizure neurologist) to help determine a course of action. Imitrex cost $41.15 as a copay and Percocet with a six hour ER wait costs $5.00, which would you do?
Lizard any experience with this?
I go to pain management doctor that understands hydro pain. Something you may want to look into. Has your neurosurgeon done a shunt gram or a study to follow the flow with radio active die. This take about an hour and a half scan to do. Just to make sure you don't have protin building up at different times and causing a small block but when it lets up it probably passes. My vents don't ever change so a CT does nothing for me. A CT will show a build up of fluid but I woyuld thing you would have to have a big excess to see much difference.
I may have learned something about myself tonight... by coincoidence. OT
by Anonymous
Anyway, I was just on LWH (but didn't leave a message), and I was reading the Spina Biffida forums and it clicked. I have balance issues, but I am not sure if Spina Biffida patients can walk. Without surgery on the legs, independantly. I know my mom's cousin's son who also has hydro has spina biffida and has leg braces.
It makes sense. I was told of an area that looked suspicious to some when I was an infant... but it wasn't SB.
Many who have it, don't know they do... Anyone here have SBO?
I went to my NS yesterday. It was actuly my NS nurse Julie and Amy. They did a shunt sieries and CT scan. Everything there looked normal. Amy showed me a comparrison between my last scan and this scan and she said my vents were slightly bigger than last time, probably as a result of the raising my pressure. She also said she does not think my jerking was hydro related and going to a Neurolgist would be a good thing and to have my family practice doctor refer me to one.
They also bumped my pressure up to 180. They said to give it a week and if it's worse to come back in and have it reset back down to 170.
Monica, Julie spoke favorbly of you when I told her I talk to you on the Adult Hydrocephalus Disscuscion Board. She has a 4 yr old and a 7 year old.
I imigiane the next shunt Dr M puts in will have an anti-syphen devise.
She is really a good person at what she does and as a person. My parents and I think alot of Julie and Dr M and Lisa...I have not seen Amy but one time. They make me feel really good not to give up on me. You know I have had that happen with several ns.
At diff times Julie has seen I was nervous about a surgery she would move her schedule around or schedule me so she could be there for support. I know she has done my stitching up or rather gluing and taping several times. The last I think Dr. M did all his self...
Long Lines, Fights Reported At Some NC Gas Stations
ASHEVILLE -- Fights broke out between motorists waiting in long lines for fuel at an Asheville station and managers called police for help.
The Asheville Citizen-Times reported that three fights occurred Monday at Roadrunner Shell.
Station manager Marsha Messer directed lines of cars in her lot and said people are panicked about the shortage.
Some experts said Asheville's distance from the Colonial Pipeline could be adding to the shortage. The pipeline is the main source of East Coast gasoline supplies that were reduced after Hurricane Ike closed oil refineries on the Gulf Coast.
Colonial Pipeline told WXII12 News that there's no problem with the pipeline itself. The problem is in the Gulf of Mexico, where nine refineries are shut down and in need of repair or electricity, company officials said.
Drivers like Harvey Floyd have witnessed a lot of pain at the pumps these past few weeks
"You can see it when you pull up at the station -- people in line, people disappointed about the prices," he said. "This has been the third time for me that I've pulled up to a gas station and I've had one choice.
"
Buncombe County deputy fire marshal Mack Salley said he's talked to local distributors who said they're sending trucks to get gas and they're coming back empty.
Bill Weatherspoon of the North Carolina Petroleum Council said retail agreements are also a factor. Stations that have contracts with suppliers can at least get some gas, but stations that buy on the open market are out of luck for now.
There is a huge gas shortage here also. Some stations still have no gas and other stations only have premium grade gas. Some stations are putting a $15 or $30 limit on the amount of gas you can get. In Waxhaw 2 of the 3 gas stations are out of gas. My mom had 1/4 of a tank yesterday and could not find an open gas station that did not have lines out the wazoo.
I wander if this is what it was during the gas crisis of 1974 when I was born.
My parents have been tell me stories of places keeping gas just for certain people like their repeat customers. They say that is the only way they made it was because of one small gas station.
Asheville has a link to update gas when and where and also Buncombe county.org...you may want to look at your Charlotte paper and county site...We are getting up about 3 or 4 in the morning to take the big truck to get gas...Check a site first though...lol
My cousin in Atlanta told me about the gas shortage there..and I was so surprised. Ours in WV is 3.75/gallon, and there seems to be plenty. Now, in the more mountainous regions, it may be a different story. In fact, I got my Kroger 10 cent/gallon discount for spending 100 at krogers, and mine was 3.65 /gallon.
3/4 of stations have gas today $3.99 to $4.09 here. I heard on the news Atlanta was going to be short on gas for a bit longer. They are telling us not to stock pile but we should have enough. Usually traffic is real busy when I go swim leaving about lunch time. Traffic is probably cut in half. People are seeing we can do with less... Also we have a hotline set up for stations price gouging. Several places are under investigation. I think it is so wrong to make a buck off people in need.
But you know Katrina hit the south alot harder that this storm. I don't un derstand why we have such a major gas shortage.
Next huricane My parents and me will have enough gas on hand incase I have to go to Charlotte ER. We filled up 3 of our 4 but was stuck with only half a tank in the ton truck. All ours are 4 door but the ton truck is the only one someone can ride in the back without having to put your feet up in the seat or at least your knees to your chest. We knew we could get to Charlotte but did not know if we could get back.
Does anyone know where's there's gas in Charlotte? There are still gas lines here. Gas stations keep on running out of gas. People are hogging gas by filling up their tank and then filling up 5 or 6 things of gas in containers. If they put a 10 gallon limit, people just go from station to station to top off. People have been getting in fights, drawing guns, and otherwise loosing thier minds.
But why does Charlotte seem to have the brunt of the shortage?
check your news paper...ours has a link to find gas. We are running at 3/4 the stations. Before waiting 2 hours in line for gas you all should just drive to either Hendersonville or Grewenville, SC...That was our plan when we worried about running out. Just days ago people were fighting and pulling guns here. The station attendants could stop all that by blocking off out going traffic from butting in. We would have lines 5 or more miles long and when someone would be cause trying to slip in line. That person and the one letting them break the line would be sent to the back. But I hate to tell you but Charlotte people are not like us. People are too eagar to fight and road rage. You would not survive like one woman who rode her horse to work on patton ave.
All this for a little storm.
Relativity speaking.
Why you should have such a gas shortage is something the feds should be looking into.
Something is very wrong here.
We had a few stations run out but they were refilled within days.
I have to say our mayor in Asheville and the board were on their toes and had gas comming in the next day. We had to conserve but trucks were commingh from everywhere.
The wife and I watched a show about McDonalds around the world and the one in
Asheville modeled after a the Biltmore mansion was so interesting that we looked
into we could pass by after our daughter's wedding in NY next year.
Do go to the Biltmore house ...Christmas is my favorite trees and decorations in every room. Everything in Biltmore is designed around the biltmore house. Andy McDowell lives in the forest near Biltmore. Tiger Woods is building in a resort near there called the Cliffs. Spring there are millions of tulips in their garden. It was the first place in the area to have electric and indoor pluming. And an indoor pool...I would suggest eating at deer park not McDonalds. You eat one burger you have eat them all. There are several places you can shop and dine and wine tasting. Also stables with horse back riding...nice to ride arounfd the grounds. You wont see another place like it. At Christmas they have candle ligh dinners also...I wont go on I keep thinking of things...Grove park in Asheville is really nice too. Great place to stay ans suppose to be haunted by the woman in pink. They have a nice spa retreat.
Please go to oprah.com and click on the link on Protect Our Children. And write the senators in your state to pass a bill that would allow money for law enforcement to catch and prosecute child preditors that molest, rape, sodomize chidren and trade pictures and tapes on the internet. Do it before the senete reccess on Sept 26.
Please do it for our children, the most precious and innocent
people. Help bring down a barbaric and hanus crime. Do it for your children, grandchildren, nieces, and nephews.
My 3 year old nephew was just diagnosed as autistic. His doctor says he believes he is on the Autism spectrum. Right now they want him to start in speech, physicle, and occuapapational therepy as soon as possable/ This is all too unsettleling for my mom becaus I was 3 when the doctors dianosed my special ed needs. It's all too real ,
Lizz, I'm going to be e-mailing you her e-mail address so you can connect and may depending on where you live we can get together.
I'm here, hon'! I got your E today; I was visiting my mom in VA; I'm in RI. I left you my #, too. Please feel free to call it and pass it on to Michelle.
I called my NS back yesterday asking about my jerking. He did not think it was a hydro issue, even though I do jerk more when I'm in more pain. He said I'm overdue for an appointment so I have an appointment on Tuesday at 9:30. The time does not make me happy because medicaid transportation will pick me up at 8:30 even though it's only 20 minutes away; but I had to take it. Hopefully this time when they pick me back up I will not walk into the glass window thinking it's the door. I did that when they reset my shunt. Must have been a really clean door.
Monica,
After reviewing the privacy policy and other information on Myspace.com I have decided not to obtain a myspace.com account. If in the future I reconsider my current decision I will let you know. Please accept my sincerest apologies at this time.
Daniel
Is it not the same as facebook,myyearbook and bebo?...Oh and caringbridge...I have accounts with all these. I'm just wondering cause everybody I know has one of these accounts. It is the same reason I do to stay in touch.
Thanks to all of u that responded to my advice question. They did turn her shunt up and that stopped the vomiting...she just got to come home yesterday...she is still weak and cant seem to do much yet...however I have already noticed an improvement in her gait and her bladder control. Seems when they had the shunt (programmable) at 100 she seemed mentally more with it...now that it is higher her walking and bladder seem better but her memory not as good...oh well...i guess its a matter of time. This whole thing has been a giant learning experience for my family. Anyway I will keep looking on here to keep updated. Oh btw is there a good website dealing with the after affects and the recovery of shunt surgery. Most everything I find is not very informative.
I'm glad she is better Tracey...
I know when I have adjustments to my shunt, I'm always told I may not notice the full difference for a couple weeks, so hang in there.
(Monica you give good information! I was surprised they would adjust it so soon after surgery...but glad they did)
I would ask the Hydrocephalus Assn. You can call, e-mail, or go on their site: www.hydroassoc.org; e-mail: info@hydroassoc.org; phone: 888-598-3789. Talking to them directly might help you more.
You could also ask The National Hydrocephalus Foundation: Site: www.NHFOnline.org; E-mail: nhf@earthlink.net; phone: 888-857-3434.
Just wanted to let everyone know I have been updating my hydro links on my myspace. Please pass on any you think I need to add... I have others refer to it plus if my internet goes down I loose my saved files and this way they are saved...
